very scared and frustrated

ra - 0.0%
ms - 100.0%
lupus - 0.0%
fibro - 0.0%

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New Member

Date Joined Aug 2015
Total Posts : 5
   Posted 8/5/2015 1:46 AM (GMT -6)   
I am absolutly terrified,
I have been being treated for chronic neck and back pain been through all the procedures ssid,epidural,faucet blocks,radiofrequency ablation the whole nine yards. 3 yrs ago i suffered from chronic fatiuge so bad i fell asleep behind the wheel of my truck and had a horrible accident. i healed up niceley on the outside but on the inside im a wreck.Just recently i have been being treated for severe headaches neck and back pain but i have other concerns up until i left this dr and got a new one because i was being swept under the rug" you are depressed get a job and you will feel better. your symptoms dont make any scense"

The new Dr is very concerned I have a history recently of severe headaches fatigue what i call eye seizures falls slurred speech,heaviness in my legs burning sensation in my back, numbness in my feet and swollen joints.All of which come and go as they please Upon her first exam with me she finds that i have diminished reflexes in my ankles and absolutely none in my knees!!!

She has scheduled me to see rhuemotology to see if we can find out whats wrong with me. I am soo scared she wants me tested for
and lupus

anyone have any suggestions i need to find out what is going on

the more i research the more im leaning toward ms but not sure

any ideas or input greatly appreciated

Veteran Member

Date Joined May 2005
Total Posts : 7723
   Posted 8/5/2015 7:40 AM (GMT -6)   
Ok, so you have these symptoms. And you are scheduled to see a rheumy for more investigation. So the worst that can happen is they don't find a cause and everything remains the same. The best that can happen is they find the cause and you can be treated! So use those facts to reign in your fear!

Just hang in there till you see the rheumy, when is your appointment?
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
"Life is far too important to be taken seriously." - Oscar Wilde

New Member

Date Joined Aug 2015
Total Posts : 1
   Posted 8/6/2015 8:58 PM (GMT -6)   
I completely agree with Lynnwood. It's easier to have an answer and then develop an health action plan versus wondering and stressing out (easier said than done... I understand)! Stress is a huge trigger as stress will suppress the immune system. Autoimmune diseases can be managed like lupus. Stress causes all kinds of issues within your body! Sounds like your body is on high gear! Take care of yourself! A bit of history about me, I have discoid lupus, I had a hysterecomy 1 year ago and when I was 8 months pregnant... I hit a moose with my vehicle head on and then I had gone through an emergency c-section. I understand about body pain, stress on all levels and it's not fun to deal with on a daily bases. If there is one thing that I can suggest to you, it's make sure you have a good support group of friends and family around you. Educate them all and help them understand what you are going through because they will be your strength when you are down! Let us know what your results are after you get your tests back.
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