Humira is not regularly used for Lupus - as a matter of fact, one of the listed warnings/side effects for Humira is med-induced Lupus!!!! Stay away!
It does sound as thought Cellcept might not be the med for you. There are 3 meds, Imuran, Cellcept, and MTX, that are about
the same level of treatment. It is not known why each of these either works or doesn't work for an individual patient - it's a matter of trial and error to see which gives you the best results.
For instance, Imuran did nothing for me but Cellcept made my Lupus quiet. (Rheumies don't say remission.) Others do really well on Imuran but Cellcept does nothing for them.
There are 2 newer treatments that are more aggressive than the Imuran/Cellcept/MTX options -- these are Benylsta and IvIG.
You may need to talk with your Dr about
exploring these other options. It's best to write down, maybe in list form, symptoms from when you felt better to now. I mean, two lists with each symptom in each list, side by side. Like:
------------------------- Jan 2015 ------------------- Aug 2015
Joint pain in hands -- Twice a week, pain 5 --- Everyday, pain 7
Make 2 copies of these lists to take with you to the appointment. Then you have one to read from while the Dr follows along on her copy. Since you've only been with her 6 months, she may not be as aware of your disease progression as she could be. Then ask her if there is another approach that can help you feel better!
The "goal" as you put it, isn't to come off of Plaquenil (slows progression of the disease) or Plaquenil (reduces inflammation) -- often Lupus patients are on these for life.
The goal is to feel better so you can have a life!
Let us know how it goes.
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002DIAGNOSING LUPUS & HW's LUPUS 101
"Life is far too important to be taken seriously." - Oscar Wilde
Post Edited (Lynnwood) : 8/9/2015 2:46:29 PM (GMT-6)