Does this sound like lupus?

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sparrowhills
New Member


Date Joined Aug 2015
Total Posts : 1
   Posted 8/15/2015 4:58 PM (GMT -6)   
I'm a 24 year old male. My first symptoms (around a month and a half ago) were numbness and tingling in my arms and legs, followed by back pain and headaches. The last couple of weeks have brought intermittent joint pain (w/o swelling), dry eyes and mouth, a bit of chest pain, itchiness, frequent urination on 2-3 days, some ear pain, skin dryness (no rashes) and a few other minor issues. I have not had any fatigue or fevers and I still try to get out and do things. However, these issues forced me to cancel my plans to begin grad school abroad next week, which has depressed me to the point that I'll be seeing a psychiatrist next week in order to get on antidepressants.

I went to a rheumatologist the week before last. I had lots of blood drawn. I have a positive ANA (1:40 speckled), normal sed rate and CR-P, normal C3 and C4, negative rheum factor, negative HIV and syphilis tests, totally normal CBC – basically, no abnormalities among the 30 or so tests run besides my ANA, a low MCV which was only 1 point or whatever outside of the normal range, and a positive Lyme Disease ELISA that was revealed to be a false positive in the second round of testing. I also have had 3 normal urinalyses and a normal chest X-ray.

Another odd thing is that I was prescribed a high dose (100mg/day) of prednisone a few weeks ago by a doctor who didn't have any other ideas. The prednisone did NOT help and during the 5 days that I was taking it I got a bit worse.

Still, my ANA in combination with my symptoms has got me all but convinced that I have lupus. I am hoping that, because of the very sudden onset of the symptoms (I have no history of any health problems whatsoever) that it could still be something fairly innocuous, like a virus. But the extent of my symptoms is so large that I'm doubtful. I am simply not strong enough to live life with lupus, especially if it's true that it affects men more aggressively than women, and I am afraid of what I'll do to myself.

Anywho, I'll be going back to my rheum in 3 weeks. Hopefully they'll run some tests that are a bit more specific to SLE -- and hopefully I won't have to wait a friggin' month in between appointments this next time!

Post Edited (sparrowhills) : 8/15/2015 5:21:52 PM (GMT-6)


FW
Regular Member


Date Joined May 2007
Total Posts : 482
   Posted 8/15/2015 9:11 PM (GMT -6)   
Hello and welcome. I am sorry that you have to go through this. Have you been to your primary physician? I ask because you have already been to a rheumatologist and most of us wait quite a while to get that coveted first appointment. Positive ANA is not always indicative of lupus. You also mention that the prednisone did not help which is very UNLIKE lupus. I know it is difficult but my best advice is to try and relax until your next appointment. Of course, if your symptoms worsen, you might want to call the doctor office and request an earlier appointment.
Take care, Fran

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 8/16/2015 4:59 PM (GMT -6)   
You may have something else. Maybe fibromyalgia? Yes, men get it too.

If it was lupus the predisone would of helped. Check out the fibromyalgia forum here.
Joy
Lupus, RA, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Depression, Allergies, diabetes, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))
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