I was in my mid 60s when first diagnosed with lupus. My case was very severe in the beginning and lupus attacked all my joints, kidneys, blood (low platelets mainly), entire GI tract, and hit me cognitively. I also had polymyositis as part of MCTD and that almost killed me and I was quadriplegic with a feeding tube for a while. My docs treated me with IVIG which saved my life and prednisone and Imuran kept me in remission for 8 years (still am for PM) until lupus started to give me skin problems and attacked my liver and blood (again). My platelet numbers have gone back up a little after being treated with steroids for several months and at present I am not on anything but get regular labs.
Are you being treated with any controlling meds? What are your new symptoms?
MCTD (SLE Lupus, polymyositis, scleroderma). Diagnosed 2005. Kidney, liver, GI tract, dysphagia, raynauds, barretts esophagus, quadriplegic in 2005. Recovered and now active in downhill skiing, golf, hiking. Meds: amlodipine, benezapril, omeprazole, potassium, folic acid, vitamins, maxide.
Remain Optimistic and you can overcome.