playing the piano

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Regular Member

Date Joined Jul 2012
Total Posts : 43
   Posted 9/1/2015 8:07 AM (GMT -6)   
Does anyone on here that has uctd play the piano? I am having issues playing and I've played it my whole life. I don't know if it's because of decreased cognitive function or if it's a disconnect between my brain and my fingers. It's very frustrating but I don't know what it is related to so I don't know if it's something I should bring up to one of my doctors.
Please let me know what you guys think, I would appreciate it!

Forum Moderator

Date Joined May 2005
Total Posts : 7720
   Posted 9/1/2015 8:52 AM (GMT -6)   
You should always bring up all concerns to your doctors! If one doctor dismisses it that only means you haven't found the right doctor yet.

If we knew what everything was related to we wouldn't need the doctors!!

These are definite symptoms that you need to report.
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
"Life is far too important to be taken seriously." - Oscar Wilde

Regular Member

Date Joined Jul 2012
Total Posts : 43
   Posted 9/1/2015 9:21 AM (GMT -6)   
Thank you Lynnwood! I will bring it up to my doctor at my next visit

Veteran Member

Date Joined Jan 2015
Total Posts : 1066
   Posted 9/1/2015 8:16 PM (GMT -6)   

Do you mean you have trouble getting your fingers to work or that you can't think of what keys to touch? I've played my entire life. Did recitals as a child.

I can't play anymore. :( I can pick out tunes with music in front of me, but not like I used to. I also cannot remember pieces I used to know by heart.

I had a photographic memory, and I have lost so much of that. I'm not sure if it's connected to lupus, as I haven't been diagnosed yet, but your post hit home with me for sure.

Osteoarthritis, bursitis, Cervical Disc Disease - pinched nerves, Raynaud's, migraines, severe anemia, severe allergies, anxiety & PTSD

Regular Member

Date Joined Jul 2012
Total Posts : 43
   Posted 9/2/2015 11:19 AM (GMT -6)   
I guess what I mean is that I know what I want my fingers to do but they don't do it, especially my left hand. I've always been very good at sight-reading but, lately, I feel like it's so difficult that I just give up. I understand how you feel-it's always been a release for me and now it's more of a stressor. But I haven't had a chance to discuss it yet with my doctor so I am not sure if it's related to my uctd, raynauds, or something else completely.
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