Polyarthraligia

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Lisabeans
Regular Member


Date Joined Jun 2015
Total Posts : 144
   Posted 9/18/2015 10:58 AM (GMT -6)   
Had my follow up rheumotogist visit today. He wants to keep the plaqunal a bit longer (3 months now) to see if I can get the full affect of it. Since I am so tired and not getting restful sleep, he is adding Amitriptyline. Any one ever take this? He is very conservative with the medicines since my UC is in remission. I looked at my code sheet. He marked off positive ana and polyarthralgia. Anyone ever heard of that? Not liking what I find on the Web about it. Thanks in advance.
Lisa
Ulcerative Colitis (remission) on lilada
Reflux on dexilant
Recently low positive ana and now on plaquinal

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 9/18/2015 11:37 AM (GMT -6)   
Amitriptyline (Elavil) is an anti-depressant, I haven't heard of it used for fatigue and sleep issues. I took it in the early 80's but was allergic too it - but that was long before my Lupus!

Mostly I think polyarthralgia is just the fancy medical term for stiff/sore joints -- a symptom that is very often found with Lupus and various other auto-immune diseases -- not a diagnosis or disease.

Here is a good discussion about it -
www.hopkinslupus.org/lupus-info/lupus-affects-body/lupus-arthritis/

Most rheumies do a sleep study to be sure of what is going on - then sometimes try a sleep aid of some sort to make sure you are getting deep restorative sleep. Plus prednisone to help with the inflammation because that is probably what is causing the fatigue.

Is your rheumy well-versed in Lupus? I ask because he seems to be treating you in a somewhat unusual fashion.

Hope you feel better soon.
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
DIAGNOSING LUPUS & HW's LUPUS 101
"Life is far too important to be taken seriously." - Oscar Wilde

Lisabeans
Regular Member


Date Joined Jun 2015
Total Posts : 144
   Posted 9/18/2015 11:45 AM (GMT -6)   
Thanks Lynnwood. He has a good reputation in my area for all inflammatory issues. He is very old school and conservative. He still has not said it is lupus but has said he can't rule it out. He also feels the plaqunal will work better if I am getting restful sleep. Yes Amitriptyline was used as an antidepressant years ago. As with Cymbalta it was found to help chronic pain and inflammation at lower doses.

Just wish I knew exactly what is going on. I know it takes time to get diagnosed sometimes and others are suffering much worse than me. I am thankful to have a plan so far and be taken seriously.
Lisa
Ulcerative Colitis (remission) on lilada
Reflux on dexilant
Recently low positive ana and now on plaquinal

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 9/18/2015 11:55 AM (GMT -6)   
"Just wish I knew exactly what is going on."

LOL. We all wish that!! The thing with auto-immune diseases is that they present differently in each person -- and can vary from day to day without any kind of rhyme or reason. It's not a fun process or experience.

Glad Dr is taking you seriously, hang in there!
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
DIAGNOSING LUPUS & HW's LUPUS 101
"Life is far too important to be taken seriously." - Oscar Wilde

MrsMacD
Regular Member


Date Joined Jan 2005
Total Posts : 117
   Posted 9/23/2015 2:44 PM (GMT -6)   
I take Amitriptyline. It has been a wonderful help!! My Dr prescribed it for sleep and pain. I was waking up numerous times a night in horrible pain. Usually hips, legs, arms and shoulders. He told me it is used for sleep and pain and the pamphlet from the drug store says the same thing. Even though it's technically an anti-depressant it's not effective for depression, just sleep and pain. I started on a lower dose that worked great for awhille, then a few months ago I was having trouble sleeping again so we upped it to 25 mg. it takes me about an hour and a half or so, then I'm down for the count and sleep soundly through the night. On many occasions I've woken up in the same position I was in when I passed out. IPad, remote and phone on me, next to me, under me lol. My husband laughs at me all the time and tells me to clear off my "coffee table" so he can lay down and go to sleep hahaha Anyway, not only do I love the results I've had, I'm annoyed at myself for not trying it over a year ago when my Dr first suggested it. I felt as if I was already on enough meds and didn't want to add another one. Boy was I wrong! I could've been sleeping like a baby sooner!
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