Confused and frustrated!!!

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Regular Member

Date Joined Jan 2005
Total Posts : 117
   Posted 9/23/2015 2:45 PM (GMT -6)   
I have a Rhuemy appointment Monday, but I just got done with my monthly Dr visit and got all my blood results. Once again they are all negative but I have just about all the physical and visual symptoms. He is keeping me on the Plaquinil and steroid cream for the lesions on my face and the small bumps that pop up all over both upper arms and lower back. He still believes very strongly in the diagnosis regardless, but it's bothering me so much not having that written proof. I'm still going to stay out of the sun as much as possible, like I've done for years when it started making me feel horribly sick every time I went to the beach, pool or backyard party/BBQ.
Has anyone gone through this too??? If so, how did or do you cope???

Elite Member

Date Joined Jul 2009
Total Posts : 14475
   Posted 9/23/2015 4:30 PM (GMT -6)   
I'm in the same predicament. My first rheumatologist told me I had SLE because I had 5 indicators. After a year of him not helping some new symptoms I switched to a new rheumatologist. This one diagnosed me with possibly sero-negative psoriactic arthritis and doubts the SLE diagnosis.

My belief is as long as my symptoms are well treated it doesn't matter the name of the disease.
Lupus, RA, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Depression, Allergies, diabetes, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

Regular Member

Date Joined Jan 2005
Total Posts : 117
   Posted 9/23/2015 5:00 PM (GMT -6)   
I very much agree with your last sentence. That's the problem. I do want to make sure I am getting the proper treatments. I'm scared that without a definitive answer I won't.

New Member

Date Joined Oct 2015
Total Posts : 2
   Posted 10/1/2015 7:54 PM (GMT -6)   
I can relate. I was diagnosed in 1985 and this week a new rheumy told me the blood test HE did says I do not have Lupus. I have at least 5 symptoms. Going to my PCP next week to have a heart to heart talk about this!
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