I have had lupus with kidney involvement for 10 years. Also have a rare muscle disease called polymyositis which is also autoimmune. Lupus hit me first and was very severe attacking all my joints, GI tract, kidneys and some cognitive impairment. Polymyositis hit me next and almost did me in and left me quadriplegic with a feeding tube 10 years ago. My diseases were resistant to treatment and after losing 40 lbs of muscle in a week it took IVIG to save my life and control my immune system. After that I took prednisone and Imuran. Once under control (this took almost a year) my kidneys and other organs recovered and I have no permanent kidney damage since my LN was caught early with a successful treatment. I take meds for my kidneys but except for a recurrence of lupus last and this year take no controlling meds.
Made a physical recovery and was able to return to downhill skiing, golf, tai chi, and other activities despite being in my mid 70s. There is life with lupus and most cases are controllable. If your boy friend has not seen a nephrologist he should and make him/her one of his team of docs. Having lupus, even a severe case, does not mean you cannot lead an active and fairly normal life. However, there is no cure and finding the right treatment is not always easy. I was in complete remission from both diseases and lupus woke up to attack my liver and blood. Ok now but I took steroids again this spring and early summer for about 3 months. Next step if it comes up will probably be IVIG. Also, every case of lupus is unique and each patient responds differently to treatment and progression of the disease. Most cases are treatable but some are resistant.
Life is good.
MCTD (SLE Lupus, polymyositis, scleroderma). Diagnosed 2005. Kidney, liver, GI tract, dysphagia, raynauds, barretts esophagus, quadriplegic in 2005. Recovered and now active in downhill skiing, golf, hiking. Meds: amlodipine, benezapril, omeprazole, potassium, folic acid, vitamins, maxide.
Remain Optimistic and you can overcome.