Posted 11/8/2015 7:32 AM (GMT -6)
The kidney numbers are ok, could be better and hopefully will be with the recheck. To put the numbers in perspective, I started dialysis when my creatinine got to 6.1 and my BUN was well over 100. With my new kidney, I no longer have any symptoms of kidney disease. If I ever notice them, I will have to go to ER as its a sign or the lupus attacking the new kidney...so hopefully never!
My social life after LN kind of went down. Not because of the diagnosis but because I had a lot of issues with meds. BUT, now I am on stronger meds to make my immune system very low so my body doesn't attack new kidney and it really hasn't changed much. Due to how low it is, I am in a preventative antibiotic all the time and any sign of infection....immediately going to doctor. I have had my kidney since 2014 and think I have gotten sick maybe 2 times and they were just common cold illnesses. I am allowed to go in swimming pools but was told to avoid hotel swimming pools (unless it was a resort one) and all hot tubs. I can eat whatever I want (no sushi but I don't like it) but I do enjoy my steak medium rare with no issues. I have been to Costa Rica and flown about 7 times. He needs to be more conscious of hand washing, not touching public door handles (maybe use a handkerchief or a friend open it) if he does open a door or touch something people have been all over, hand sanitizer works great!
When you get home, it might be a good idea to immediately change clothes and wash up real good. When I was on another drug, my sister in law was a teacher and would have to come home, put clothes in washer, and jump in shower BUT, my WBC was .8 and that shouldn't happen on the dose of cellcept he is on :)! It happened when I did a very strong drug at a very high dose of cytoxan.
I have to run to church, I will check back in later to see if you have any other questions :)!