Scared I have Lupus

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New Member

Date Joined Nov 2015
Total Posts : 1
   Posted 11/16/2015 8:13 PM (GMT -6)   
I can't believe I didn't know how likely it was until the last hour, reading online. I got the positive ANA test -- >1:1280 on the Homogeneous and Speckled -- several weeks ago, but I didn't know how high that test result was. My doctor only suggested at the time that it meant I might be at a higher risk for autoimmune diseases in the future.

But, I have symptoms...

A couple times in the past month or so, I've gotten a rash on my cheeks (not nose bridge). I guess you can call it a rash. They got red and hot and a little itchy and it lasted for several days. Turned kind of dry.

Once a few months ago, during a period of exhaustion and stress, I had an unexplained fever.

I have long-standing gastrointestinal problems, which my doctor is working with me on. It started when I was nine (I'm 30). I also sometimes have what I also thought of as my heart flipping over, or a skipped heart beat. It happens rarely, but did more often during a period several years ago of very high stress.

And, the reason for the test, I have joint pain in my hands and knees, especially. It's not very painful, but my knees get very stiff when I sit cross-legged or with my knees bent. This started when I was very pregnant, so I thought it had to do with that, but it continued (although it's gotten less severe; it did used to be painful) and now my son is one...

I saw a rheumatologist on Friday, and she ordered a lot of blood work and did x-rays of my hands and knees. It will take at least a week and a half to get the results. But I forgot to tell her about the fever, because I didn't know that was a symptom. And I think it's possible my hair is thinning. I have very thick hair, and I thought my issue with my hair was a bad cut, but recently (before reading things online!), I thought, my hair doesn't seem as thick as it used to. But I thought it had to do with having my baby...

It sounds like I have lupus, doesn't it? I'm scared. Both to get a diagnosis, but also maybe to be left in limbo, because I know it's tricky to diagnose. And didn't tell her about the fever, heart palpitations, and possible hair loss. I think I'll call tomorrow to add those to the patient history. But then that just makes me more scared that I'm right, and I do have lupus...

Help me feel less alone with this?

Elite Member

Date Joined Jul 2009
Total Posts : 14475
   Posted 11/16/2015 9:56 PM (GMT -6)   
First, deep breath.....

There's no need to panic. Lupus is diagnosed with a list of 11 indicators. You must meet 4 of the 11 to be diagnosed with lupus. Your rheumatologist is checking your symptoms right now with that list. If you have problems that you have not told yet then update them for him.

Next, stay away from Dr. GOOGLE. It will just freak you out more than you need to be right now. Stress can make you feel worse.

I hope the best for you. Feel free to stick around for support while you wait for answers.
Lupus, RA, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Depression, Allergies, diabetes, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))
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