Are these common Lupus signs and symptoms?

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slee17
Regular Member


Date Joined Sep 2015
Total Posts : 102
   Posted 11/30/2015 7:18 AM (GMT -6)   
Hi everyone,

I'm wondering if anyone with lupus has any of these symptoms? I was diagnosed with fibromyalgia, but I've recently been wondering if my fibro diagnosis is correct, as I have new symptoms and some symptoms have gotten worse. I am going to talk to my doctor, but I think she is going to say it's just fibro and/or anxiety. These are the symptoms I've had over the past year and a half:

Constipation. Diagnosed with severe IBS-C.
Abdominal pain
Headaches. Had chronic daily headaches for 3 months, which then went away. They returned a few weeks ago.
Blurred vision. Went away after headaches went away, but came back about one month ago.
Waking up out of sleep with heart racing and lightheadedness.
Heart palpitations.
Insomnia.
Very poor, light, unrefreshing sleep for the past 2 months. Most nights I don't feel like I fall asleep at all.
Fatigue. Tired most of the time.
Back pain. Mostly mid and upper back.
Neck pain, usually on the front of my neck.
Chest pain. I've been diagnosed with costochondritis a few times, so I believe this is what it is usually.
Pain in my ribs and breastbone.
Cough (worse at night) and throat clearing. Probably from GERD (I was diagnosed in 2009).
Mild asthma (from GERD and probably allergies).
Bloodshot/red eyes. This has only been a problem for the past couple months (probably from lack of sleep).
Twitching. I had an eyelid twitch for one month and then random twitches all over my body.
Pain in my extremities (both arms and legs). Usually worse at night and they're dull, achy pains. Sometimes though, they feel like gnawing pains. They come and go; I can't tell if it's muscular, skeletal, or my joints.
Sciatica-type pain and numbness in right leg/hip a few times.
Heat intolerance.
Sore throat (could be from allergies or GERD).
Petechiae (tiny purple or red dots on skin). Usually develop after I get my blood pressure taken or lean against something).
Feeling out of it. I don't know how else to describe it.
Brain "fog".
Some anxiety, but only at night. Usually when trying to fall asleep and often is about falling asleep.

I also have eosinophilic esophagitis and moderate scoliosis.

Tests I've had done:

MRI of head (Results: Minimal punctate FLAIR/T2 hyperintensities are present in the subcortical & deep white matter of the cerebral hemispheres. Otherwise normal. Doctor said I had/have migraines).
CT of abdomen and pelvis. Normal.
Colonoscopy. Normal, except redundancy of my sigmoid colon.
Endoscopy. Positive for eosinophilic esophagitis.
Abdominal X-Ray. Normal.
Chest X-Rays. Normal.
Echocardiogram. Normal.
30 Day Cardiac Event Monitor. Normal, but did have one brief episode of SVT and numerous PACs noted throughout recording.
Allergy testing. Tested positive for some allergens.
Blood tests have all been normal, EXCEPT: low vitamin D level, slightly low potassium level, ferritin is on the lower side.
CRP and ESR both normal.
I have NOT had an ANA test or any tests for autoimmune diseases. Also, I have NOT had a Lyme titer test.

Some of my symptoms have improved, while others have worsened. Some have just developed a couple months ago. The pain in my extremities, sciatica-type pain, and severely poor sleep are most concerning to me and have been going on for 2 months (and headaches returned). I really don't know if this is just fibro and would appreciate any input. Thanks in advance!



*Cross posted in the Anxiety, Chronic Fatigue Syndrome, Fibromyaglia, Lyme Disease, and Multiple Sclerosis forums.

Lynnwood
Veteran Member


Date Joined May 2005
Total Posts : 7723
   Posted 11/30/2015 8:47 AM (GMT -6)   
Here is a list of the most common symptoms used to diagnose Lupus. www.medicinenet.com/systemic_lupus/page3.htm#what_are_lupus_symptoms_and_signs Of course, Lupus can also cause other symptoms, some of which you've mentioned.

Lupus is diagnosed by a rheumotologist, as it is an auto-immune disease. Don't trust other Drs when they say yes or no on Lupus, they often are going on just one symptoms or just one blood test. It takes a combination of things to do a complete diagnosis.

Best wishes.
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
DIAGNOSING LUPUS & HW's LUPUS 101
"Life is far too important to be taken seriously." - Oscar Wilde

slee17
Regular Member


Date Joined Sep 2015
Total Posts : 102
   Posted 12/1/2015 3:03 AM (GMT -6)   
Lynnwood said...
Here is a list of the most common symptoms used to diagnose Lupus. www.medicinenet.com/systemic_lupus/page3.htm#what_are_lupus_symptoms_and_signs Of course, Lupus can also cause other symptoms, some of which you've mentioned.

Lupus is diagnosed by a rheumotologist, as it is an auto-immune disease. Don't trust other Drs when they say yes or no on Lupus, they often are going on just one symptoms or just one blood test. It takes a combination of things to do a complete diagnosis.

Best wishes.


I do have other symptoms that I forgot to list, such as weakness and sun sensitivity. about 4 years ago, I spent the afternoon out in the sun in 90 degree heat. I felt so sick when I got home and had the worst sunburn I've ever had on my back. It didn't look like a normal sunburn though. Also, when I have used tanning beds a few times in the past, I break out in a really bad, itchy rash. I never thought anything of this until reading that it can potentially be a symptom of lupus. I hate warm weather and the sun for those reasons! Anyway, thank you for your feedback. I will be seeing my doctor this week and ask about doing an ANA test and/or getting a referral to a rheumatologist.
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