Treat Lupus with Stem Cell

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Manny60120
New Member


Date Joined Dec 2015
Total Posts : 2
   Posted 12/2/2015 1:24 PM (GMT -6)   
My wife suffers from LUPUS and fibromyalgia. She has been struggling for over 5 years. She seems to be getting worst. I like to see if anyone has undergone stem cell replacement as a solution and if so I like to know where? what type of stem cell replacement? what has been the success with you? Any other information you can provide.

Bsime
Veteran Member


Date Joined Apr 2006
Total Posts : 1344
   Posted 12/24/2015 5:44 PM (GMT -6)   
Northwestern Memorial Hospital in Chicago has been doing stem cell transplants for about 20 years with a lot of success for lupus and other autoimmune diseases. Dr. Richard Burt heads the program and I know several who have been treated with varying success. There is a Facebook page devoted to his work if you want to talk to actual patients.

Chicago HSCT Stem Cell Transplant Study - Official Patient Run - Dr. Burt is the group name.

Keep in mind this is a treatment of last resort. The immune system is destroyed by chemo and regrown with stem cells so it is very risky, takes a long time, and is very expensive. Not all insurance will cover it but the patients on FB can fill you in about all of that. I have had 2 friends receive the treatment and one failed due to the type of disease and Dr Burt will no longer treat that disease....sporadic Inclusion Body Myositis. My other friend is doing ok but not sure if she is ready to declare it a success.

There are charlatans promoting adipose stem cell treatments which are out patient procedures and insurance does not cover them because they are scientifically unproven. I know many who have taken these treatments but most have seen no improvement although a few claim it has helped. Beware of these treatments which are mostly being done by dermatologists.

Bill
MCTD (SLE Lupus, polymyositis, scleroderma). Diagnosed 2005. Kidney, liver, GI tract, dysphagia, raynauds, barretts esophagus, quadriplegic in 2005. Recovered and now active in downhill skiing, golf, hiking. Meds: amlodipine, benezapril, omeprazole, potassium, folic acid, vitamins, maxide.

Remain Optimistic and you can overcome.
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