Help! We need a doctor!

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Teacher lady
Regular Member


Date Joined Apr 2015
Total Posts : 125
   Posted 12/2/2015 10:56 PM (GMT -6)   
My co worker believes she has lupus. She had been treated several years ago successfully, but now thinks she is flaring. She has groin pain, joint swelling to the point of being unable to walk. We live in California, near Fresno, and she has been told there is a two month wait to be seen. Is there a clinic or teaching institution anywhere in California, that she should try to get into? She can't work in her current condition and is very frustrated trying to get a diagnosis and treatment.

Lynnwood
Veteran Member


Date Joined May 2005
Total Posts : 7723
   Posted 12/3/2015 8:05 AM (GMT -6)   
I don't personally know of any rheumatologists in that area, however this is what I usually recommend to anyone looking for treatment.

Visit www.lupus.org. Find the information about the chapter that is closest to you, and contact that chapter. They will not recommend a specific Dr, but can give you a list of the local Drs that serve on their advisory board. Those are generally the Drs in the area that have the most interest in seeing Lupus patients, and the most experienced with Lupus.

You can also see if they have any local support groups, and visit those groups and ask around for recommendations. Or if you have large hospitals in the area, ask if they have any support groups for Lupus or other auto-immune diseases.

Hope that helps, good luck!
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
DIAGNOSING LUPUS & HW's LUPUS 101
"Life is far too important to be taken seriously." - Oscar Wilde

Teacher lady
Regular Member


Date Joined Apr 2015
Total Posts : 125
   Posted 12/3/2015 9:31 AM (GMT -6)   
Thanks! She is so frustrated. She has four kids and a job and needs to get a solid diagnosis and treatment.
Hubby dx 3/11/15
Preop PSA 6.8
DaVinci 4/2/15
Continence- coming right along 1-2 pads a day, mostly for security,not much wetness.
Pathology: seminal vesicles involvement, clear margins, zero lymph, bone scan negative, T3b, Gleason 4+3
7/15 PSA <0.03
8/15 tri mix - it works!
10/15 PSA<0.03 continence good, no more pads

Lynnwood
Veteran Member


Date Joined May 2005
Total Posts : 7723
   Posted 12/3/2015 9:56 AM (GMT -6)   
A simple search for rheumatologists in Fresno, CA found 8 doctors.

www.ucomparehealthcare.com/drs/california/rheumatologists/Fresno.html?gclid=CIPngs77v8kCFUgXHwod96wEQQ
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
DIAGNOSING LUPUS & HW's LUPUS 101
"Life is far too important to be taken seriously." - Oscar Wilde

Teacher lady
Regular Member


Date Joined Apr 2015
Total Posts : 125
   Posted 12/4/2015 2:30 AM (GMT -6)   
None can see her for two months. Is that common?
Hubby dx 3/11/15
Preop PSA 6.8
DaVinci 4/2/15
Continence- coming right along 1-2 pads a day, mostly for security,not much wetness.
Pathology: seminal vesicles involvement, clear margins, zero lymph, bone scan negative, T3b, Gleason 4+3
7/15 PSA <0.03
8/15 tri mix - it works!
10/15 PSA<0.03 continence good, no more pads

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 12/11/2015 10:32 AM (GMT -6)   
Yes, unfortnately a waiting time of two to three months to see a good specialists can be that long. Have her make the appointment and then ask to be placed on the cancellations listing, that way if someone cancels she might get seen sooner. With so many pateints and so very few good RA Doctors it can be frustrating for waiting, It took me Three months to see a RA specialist for the first time, so unfortnately that is the average wait time...
But again once she makes the appointment she can ask about being placed on the cancellations listing to get seen sooner if possible...
Please tell her I send my Prayers and well wishes and to hold on, if possible...
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* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
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