LAWCHICK - chest pain/plaquenil

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New Member

Date Joined Dec 2015
Total Posts : 1
   Posted 12/9/2015 10:05 PM (GMT -6)   
HI. I just found this site and I'm glad I did, but unfortunately I only have a second to post a comment. I have had lupus since I was a teenager (probably my whole life), not diagnosed until in my 30s and have been on Plaquenil since then; I am 51 now. I have definitely had the chest pains beginning Jan 2015. Thought it was pericarditis or pleuritis, then I got a cough in Feb (which didn't go away until October) that caused the chest pain to be EXCRUTIATING when I coughed. I really have never gotten off of Plaquenil and last year I found that I have cataracts in both eyes. My vision from 48 yrs old to 51 yrs old has drastically declined. However, I have been in school getting my Master's degree at the same time so I think that the long nights of studying made it worse. I graduate next week. I originally got my degree in nursing to find out why I lost my 3rd child. Diagnosed myself, confirmed by tests. This year is the worst, extreme pain, fatique is terrible, that "heavy" feeling every time I walk, nauseated and I can't find a doc to presribe me Adderal for the fatigue.. I tried it and I felt like I actually had life in me for the first time in a year. I'm just slowly being tortured. Gotta go..God bless you.

Veteran Member

Date Joined Jun 2006
Total Posts : 1650
   Posted 12/20/2015 11:55 AM (GMT -6)   
Hi slowtorture. I think no one replied to you because you addressed your post to Lawchick. If you haven't seen a rheumatologist about your current conditions, I think you need to see one STAT. Your rheumy and probably most docs aren't going to prescribe Aderall. Steroids will give you energy and suppress your lupus. You will probably be given methotrexate or other first line lupus meds depending on your blood work results. If you are seeing a rheumy and don't like him/her, try another. Many of us had to find a rheumy that "fit" us. I have been where you are now and it's awful to feel so weak and in such pain. Prednisone will make you feel so much better. Let us know how it goes. Love, Butterflake
SLE '05, Sjogrens, fibro, Raynaud's, major depressive disorder, CNS problems, GERD, angina, 1st stage kidney disease. Many meds: better living through chemistry
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