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MonicaTrip
New Member


Date Joined Jan 2016
Total Posts : 5
   Posted 1/4/2016 11:58 AM (GMT -6)   
I have had sle lupus for a few years, been in "remission" for years. Do not have insurance and so have not been on any medication for awhile. I recently had what I think is first seizure, and where I lost conciousness, pain and some swelling in lymph node areas, profuse sweating though am not hot, swollen joints with or without pain in ankles and knees. Having a lot of confusion, dizziness, forgetfulness, vision issues- lights are flickering, see spots in my vision, this comes and goes, mostly at work with bright fluorescent lights. Having pain in fingers, elbow, and shoulders, some arm weakness at the shoulder joint, random itchiness, nausea and vomiting. Have been having flares on and off since June 2015- one of which I had 104 fever and horrible neck and back pain with leg numbness, which was new. Flares seems to be increasing in frequency with symptoms that are new to me. Not sure if should got to er being as they do nothing, I know this because have been during this period and only got pain pills, but am a little scared, and about at my breaking point. Does anyone have suggestions? Should I go to ER? These are all new symptoms, well except the joint pain/swelling. I am achy all over and really just feel like my whole body is waging war against me.

Post Edited (MonicaTrip) : 1/4/2016 10:16:11 AM (GMT-7)


Lynnwood
Veteran Member


Date Joined May 2005
Total Posts : 7723
   Posted 1/4/2016 12:59 PM (GMT -6)   
It certainly sounds like you need medical treatment. I would suggest you either see a General Practitioner, your Rheumatologist or the ER.

As you know from having Lupus for a while, the ER really isn't the place to get long-term treatment to get your flares under control. Sometimes hospitals can help direct you to low-cost clinics with sliding scales, perhaps that would help.

Best wishes.
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
DIAGNOSING LUPUS & HW's LUPUS 101
"Life is far too important to be taken seriously." - Oscar Wilde

MonicaTrip
New Member


Date Joined Jan 2016
Total Posts : 5
   Posted 1/4/2016 1:33 PM (GMT -6)   
thank you! have been trying to get in touch with those kind of clinics but can't get a call back. I know the er is not the best option- I just don't have insurance and something is clearly not right to be having so many flares and new symptoms. The worst part is no one will really see you or run tests without insurance. Do you think it is significant to be having flare ups regularly, and to be having new symptoms, like the seizure? Is it just typical lupus or should I be more concerned? I just don't know if it is worth the ER visit

Lynnwood
Veteran Member


Date Joined May 2005
Total Posts : 7723
   Posted 1/4/2016 2:09 PM (GMT -6)   
If I lost consciousness, I know I would be heading to the ER. That isn't a "normal" part of any disease, and you actually have no way of knowing if what is going on with you is even related to Lupus or not. You could have something very, very serious going on.
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
DIAGNOSING LUPUS & HW's LUPUS 101
"Life is far too important to be taken seriously." - Oscar Wilde

MonicaTrip
New Member


Date Joined Jan 2016
Total Posts : 5
   Posted 1/4/2016 2:16 PM (GMT -6)   
I understand what you are saying, I was unable to go the day it occurred, does it makes a difference if you go to the er like a week or so later?
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