Suspicious to have lupus!! Should I tell family?

Can I get married evern with lupus?
Yes - 100.0%
No - 0.0%

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New Member

Date Joined Jan 2016
Total Posts : 2
   Posted 1/12/2016 1:28 AM (GMT -6)   
Hello everyone, I just realised that I have Lupus, still wiating to see the dsDNA result. I have had morning fatigue for almost 2-3 years, my GP told me it might be beacouse Vitamin D or Iron. Then I took vitamin D and Iron pill for almost 6-7 months but the joint and muscle pain was coming and go! After a while I noticed a rash on my face with painful pimples, GP diagnosed that it's rosesea and gave me antibiotic and some creams. 2 months ago I felt a bit pressure on my chest exactly on my heart! Then I tried to find the real problem with my body and I realised that theses symptoms are exactly like Lupus. I changed my GP and the new GP did ESR, RA, dsDNA test and I'm waiting to see the results. He is suspicious to lupus as well.

At the moment, I'm overseas (Melbourne), 32yr male, third year PhD student. I'm living by myself and family don't know this (far away from here).

I had many plans for after my graduation, finding a good job, having my own family, but now I'm completely devastated. Don't know how should I tell mom, I'm worry more for my mom not me. I ruined her wishes and hopes

Just did not have anyone to tell this story found this fabulus forum to share my anxiety and thoughts.

Post Edited (MoriMel) : 1/12/2016 12:38:19 AM (GMT-7)

Elite Member

Date Joined Jul 2009
Total Posts : 14475
   Posted 1/12/2016 6:26 PM (GMT -6)   
Having lupus is not the end of the world. You can have a pretty good life.

You just need to follow your doctor's plan, eat healthy, exercise, take your medications, and be careful of the sun if you are a sun sensitive.

The lupus pages tell the worst of the illness. Some of us go into quiet with our illness and feel better.

Be patient until the doctor gets back with you and don't fret.
Lupus, RA, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Depression, Allergies, diabetes, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

Forum Moderator

Date Joined May 2005
Total Posts : 7674
   Posted 1/13/2016 10:32 AM (GMT -6)   
I think you are jumping the gun. Unless you have a degree in rheumatology, you are not qualified to diagnose yourself with Lupus. (And your GP isn't really qualified to do more than suspect Lupus, you need a rheumatologist.) And even if you do have Lupus, it can be controlled, and it can even go into remission for many people.

Have you read Lupus 101 and/or the diagnosing information at You must have at least 4 of 11 symptoms to be properly diagnosed, and what you listed aren't really Lupus symptoms.

Lots of things can contribute to vague joint/muscle pains & morning fatigue. Unless you are an unusual student, I would almost bet you have a less-than-optimal diet and irregular sleep patterns. Focus on eating clean protein, and low-carb vegetables - leave the soft drinks and carbs/breads alone. Get some regular exercise - like walking 30 minutes a day. Go to sleep at a regular time.

Also, rash with pimples is not a Lupus rash.

Just do the simple things to take care of yourself, and don't get ahead of yourself.
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
"Life is far too important to be taken seriously." - Oscar Wilde

New Member

Date Joined Jan 2016
Total Posts : 2
   Posted 1/13/2016 4:52 PM (GMT -6)   
Ų§Thanks an ocean couchtater and Lynnwood, I feel much better after reading your replies, I stay optimistic to get the blood test results and see the specilist. Let you know whatever happens. Does a lupus attack may take 2-3 days? coz I feel all symptoms gone and only a bit pain in my legs (not joints). My joints only clicking, no pain or redness or inflammation.

To be honest, I do blood test at least two or three times per year, my all blood tests for last three years have shown very normal kidney and liver function ( Creatinine, T-protein, urea, Albumin, GTT, ALT, AST), also ESR, CBC, RBC, WBC, serum and platelets, sodium and potassium, chloride, bicarbonate, glucose, lymphocytes, neutrophiles, blood pressure have been always in the normal range. The kidney and liver sonography was completly normal which I did 6-7 months ago. Only things I'm trying to bring back to the range are cholesterol which a bit above the range and triglyceride which is really high, 2-3 times more than normal range, I'm taking 50mg pill for my subclinical thyroid problem. Also I donate whole blood and plasma, both in total 4-5 times per year (2 times blood and 2-3 times plasma).

Thanks alot again, I'm leaving this comment with lots of hopes in my heart. God bless you

Post Edited (MoriMel) : 1/13/2016 5:16:51 PM (GMT-7)

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