Need help from experienced Lupus lab readers : )

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New Member

Date Joined Jan 2016
Total Posts : 13
   Posted 1/12/2016 10:43 AM (GMT -6)   
I need help! Back in April I was referred to a Rheumatologist from my OB-GYN, I thought I was experiencing hair shedding and thought it was a symptom of coming off my birth control but for some reason she referred me to a Rheumatologist. *Do need to mention I have thyroid disease, my thyroid was removed in 2007 (I had Graves). So my hair was more than likely from just thyroid related*. My hair is not bad anymore. However the Rheumatologist ran labs on me because he wasn’t sure why I was referred there, well I came back having a positive ANA.

Homogenous Pattern 1:640
My Anti-DNA(DS) Ab Qn said 2, with the ranges listed below:
Negative <5
Equivocal 5-9
Positive >9

This Doctor CALLED me over the phone and told me I had Lupus SLE. I had NO clue what Lupus was. He never even asked my family or physical history. I went into a panic and googled Lupus and frightened myself. I ended up going back to that office and seeing another Doctor and he spent over an hour asking me many questions about myself. He reassured me that I did not have Lupus. But ever since this happened to me I have had severe healthy anxiety and I cannot let this go. I’m in constant fear that something is going to happen to me or when something random happens to me I go in to fear that oh my gosh this must be a Lupus sign.

Please please please someone help me. Please help me rest my mind. I don’t know what to do anymore. This was April of 2015 and here we are January 2016 and I still suffer from anxiety regarding this.

Thank you in advance.

New Member

Date Joined Jan 2016
Total Posts : 13
   Posted 1/12/2016 12:57 PM (GMT -6)   
Anyone?? cry

Mrs. Brady
Regular Member

Date Joined Feb 2015
Total Posts : 242
   Posted 1/12/2016 1:11 PM (GMT -6)   
Lupus is not diagnosed on any single blood test. Furthermore, A Positive ANA Does Not Equate to Having a Disease. Please see the Lupus 101 Board for an explanation of ANA as well as the criteria for diagnosing Lupus. I am not a doctor, but your Anti-DNA is 2 which falls into the negative category and you must meet 4 of the 11 criteria for a diagnosis of lupus. Sounds like the first doctor made an error and the second confirmed it. I wouldn't stress over the positive ANA or needlessly worry about "what if" scenarios. If you feel fine that's what matters at the end of the day.
Hoshimoto's Hypothyroidism DX Oct 1997
Left Sided UC DX Nov 2013
GERD DX Nov 2013
SLE, DX Sept 2015
Medications - Synthroid, Hydrocort Enemas; Prilosec; Poly-Iron 150 Forte; Plaquenil; Vitamin D
Past Meds: Lialda - developed severe joint pain, initial DX DILE, discontinued mesalamine, symptoms subsided but returned - less severe, DX SLE

New Member

Date Joined Jan 2016
Total Posts : 13
   Posted 1/12/2016 1:26 PM (GMT -6)   
Thank you! I have let this go for several months, but it's like been brewing back up in my mind a lot. This really caused me to have health anxiety. : (

I really appreciate your reassurance. blush

Veteran Member

Date Joined May 2005
Total Posts : 7725
   Posted 1/13/2016 11:19 AM (GMT -6)   
I think your first Dr was not very experienced, I would go so far as to say he was just plain stupid. Nobody calls and tells you that you have a disease without at least scheduling an appointment and developing a treatment plan.

As Mrs Brady said, Lupus is diagnosed by having at least 4 of 11 symptoms, and an ANA is just 1 of the symptoms. ANA can indicate a number of diseases, but each of them requires a number of other symptoms, nothing is diagnosed by ANA alone.

Check out our Lupus 101 thread, or look at I think you will find you are not experiencing Lupus symptoms -- hair loss doesn't even make the list. The OB/GYN should have sent you to an endocrinologist - they are the experts in thyroid disorders, not a rheumy.

Let us know if you have more questions!
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
"Life is far too important to be taken seriously." - Oscar Wilde

New Member

Date Joined Jan 2016
Total Posts : 13
   Posted 1/13/2016 12:45 PM (GMT -6)   
Thank you for your reply! I agree that Doctor was just AWFUL! And thanks to him he has caused me to develop health anxiety! Because like I said I had no idea what Lupus was so I had spent hours/days googling and scaring myself!

I really appreciate your reply! I really think my ANA could be positive because I had Graves (gland was removed), and I have been tested for antibodies for Hashimotos.
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