First off, I really appreciate you taking the time to read this. I am in a stage where I just wanted to hear your thoughts/experiences, here is my story in the shortest form I could say.
15 years ago, I was diagnosed with Hashimoto's Thyroiditis through an FNA. Years later, I had half of the thyroid removed due to it's size (the other side was normal). about
5 years later, the other side increased too large and I had it removed and it was found that I had a 1 cm tumor / Papillary Thyroid Cancer. I have been cancer free since surgery.
I have dealt with swelling of the feet/ankle (especially the right one) off and on for years. I have dealt with joint pain, which I always attributed to my thyroid disease. Approximately 3.5 years ago, I dealt with severe digestion issues (pain/running to the bathroom/lost almost 60 pounds), which in fact were so horrible, that I could only digest chicken/potatoes/bread/crackers for one year. During this time, I was tested for Crohn's (colonoscopy) and Celiac (2 upper gi's) and both were negative. I then went gluten free, and I seemed to improve however I could not tolerate alcohol or spicy foods. Note: the digestion issues started after having Mono. I have had mono 5 times in my life, I am 41, but tested negative for EBV. I also experienced a lot of hair loss at this time.
Last year, I had Episclerities 5-7 times (my first time dealing with it). When I have Episclerities, I feel my whole body in a flare. I am so fatigued, joint pain, headaches, foggy head, etc. Along with this my monthly periods are SO heavy with a lot of clotting (I have never had that). I am currently on disability because I cannot get a break from these flares, they are just hitting me one after another and lasting awhile. I have also had an MRI of the brain last year, which was clear.
My bloodwork in December 2015 showed a positive ANA of 1:1280 Diffuse and a sed rate 35 (have been between 28 - 47 last year). DNA & ENA negative. To my knowledge, I have never had a positive ANA in my life. My primary care & eye pathologist feels that this may be Lupus. My Rheum said my positive ANA was caused by Hashimoto's, and said it is not Lupus because I do not get sores in my nose/mouth. My Endocrinologist said he doesn't think that my Hashi's caused the positive ANA. Long story short, I am getting a second opinion from another Rheum doctor.
Oh, last but not least I am dealing with a red sore on my tongue this week and today it feels swollen. I have had a butterfly rash on my face for many years. Don't get me wrong, I welcome negative results, but am feeling frustrated by all of these symptoms and no clear answers or medications. I cannot tolerate steroids with my thyroid for some reason, they make my heart race. I have been taking Advil and a NSAID drop for my eyes to relieve inflammation. On top of all of this, I have been dealing with some really bad anxiety attacks, which I have never dealt with previously.
I am sure that I have left things out, please let me know your thoughts and if you have any questions!
Post Edited (Firefly20) : 1/14/2016 2:30:28 PM (GMT-7)