Some rheumatologists do mistakenly assume that a negative ANA means nothing auto-immune is going on. One way to get a rheumy that is more well-versed in auto-immune diseases is to visit www.lupus.org
and find the information on your local chapter. Then contact the local chapter and ask for the list of Drs who are active on their advisory panel. These will be the local Drs who are interested in Lupus & similar auto-immune diseases.
Make sure that you take a copy of the positive lab results with you to the appointment (a copy the Dr can keep), as well as a very complete written list of your daughter's symptoms. Go over every symptom with the Dr, include any details as to when they occur, how long, severity, anything you can think of.
If they try to blow you off, I'd go with the "My daughter is in pain, Would you let YOUR child remain in pain" approach. Sadly, a plea for help is often better received than indignation that they don't do better.
Post Edited (Lynnwood) : 12/26/2016 8:00:40 PM (GMT-7)