Barbara Lee - Jan 31st

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Lynnwood
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Date Joined May 2005
Total Posts : 7720
   Posted 1/31/2016 11:59 AM (GMT -6)   
Barbara is having more and more trouble breathing.

At her Dr appointment Friday they admitted her to the hospital so that if she gets any worse she can be intubated immediately. So far she's able to breath (with oxygen) without intubation.

They discovered she has air in her chest cavity (outside her lungs) pressing on her heart. Tomorrow they are trying to do a passive (non-biopsy) method to figure out what is causing the issue.

I'm sure Barbara will appreciate your thoughts, prayers, and posts.

Butterflake
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Date Joined Jun 2006
Total Posts : 1650
   Posted 1/31/2016 12:04 PM (GMT -6)   
Thank you Lynnwood. I feel so badly for her. Please tell her she's in my thoughts and prayers.
SLE '05, Sjogrens, fibro, Raynaud's, major depressive disorder, CNS problems, GERD, angina, 1st stage kidney disease. Many meds: better living through chemistry

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 1/31/2016 3:41 PM (GMT -6)   
You need to start a post on your status, Butterflake -- or call & update me & I'll post it. Inquiring minds want to know!

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 1/31/2016 11:03 PM (GMT -6)   
Poor Barbara. I hope they can help her. I'll be thinking of her.
Joy
Lupus, RA, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Depression, Allergies, diabetes, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

Lynnwood
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Date Joined May 2005
Total Posts : 7720
   Posted 2/1/2016 7:54 PM (GMT -6)   
Barbara is resting comfortably, without having to be intubated, after her tests today, but they don't have any results yet. I'm not sure if they have to try & grow cultures or if other tests will follow.

DianeB
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Date Joined May 2013
Total Posts : 1343
   Posted 2/2/2016 12:54 PM (GMT -6)   
Thanks for updates!!

Barbara - every day you are in my thoughts & prayers hon..
Herniated cervical discs & other disc / spine issues, Arthritis, spurs
Injuries &/or pain to/in shoulders, elbows, wrists, knees, legs, ankles
Fibro / myofascial pain, neuralgia, neuritis

UserANONYMOUS
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Date Joined May 2011
Total Posts : 4481
   Posted 2/2/2016 1:05 PM (GMT -6)   
Thanks for keeping us updated Lynn.

Prayers and thoughts for Barbara!

UA
Moderator - Bipolar

Depression, Borderline Personality Disorder.
Chronic Pain - Cervical Kyphosis, Cervical Spondylosis, Thoracic Scoliosis.

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 2/2/2016 6:09 PM (GMT -6)   
I just received an update from Barbara's daughter. Barbara's breathing has gotten in increasingly strained today and they have bumped her up to 8 liters of oxygen. (I don't really know what that means, if anyone can enlighten us? Or I'll try to do some research.)

Apparently they are thinking of opening Barbara's chest to do some sort of biopsy tomorrow.

Butterflake
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Date Joined Jun 2006
Total Posts : 1650
   Posted 2/3/2016 2:09 PM (GMT -6)   
All I know is 8 liters is a friggin lot! The "average" person who needs O2 gets 2 liters just to help raise their oxygen saturation level in their blood (O2 Sat). When hospital personnel place that little device on your index finger it measures your O2 Sat. Unfortunately when you are having as much trouble breathing as Barbara is, they draw blood from an artery to get a full set of blood gases. Arterial draws are difficult and a bear to endure, even if they don't take long to draw. Oh Barbara, please get better. Love, Donna
SLE '05, Sjogrens, fibro, Raynaud's, major depressive disorder, CNS problems, GERD, angina, 1st stage kidney disease. Many meds: better living through chemistry

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 2/3/2016 2:48 PM (GMT -6)   
Update -- opening chest Thursday am for biopsy. Meanwhile back down a bit from 8 liters to 6, which I think is what she usually uses. At 8 liters, it requires a face mask, while at 6 she can still use the nose cannula.

Thanks for putting the 8 liters in perspective, Donna, I didn't find anything all that helpful in trying to research it.

Jake'sMom
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Date Joined Jan 2015
Total Posts : 1066
   Posted 2/3/2016 6:46 PM (GMT -6)   
Praying.
Stacey

Osteoarthritis, bursitis, Cervical Disc Disease, DDD, tilted pelvis - pinched nerves, Raynaud's, Sjogren's, migraines, severe anemia, severe allergies, double kidney/Ureter on right side, cyst in right kidney, heart disease, anxiety & PTSD

auntkay
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Date Joined Apr 2004
Total Posts : 1203
   Posted 2/4/2016 7:43 AM (GMT -6)   
Thank you Lynn for keeping updated post on Barb. I did speak with her last night for a bit. What an amazing woman she is. Keeping Barb and her family in my prayers!

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 2/4/2016 12:57 PM (GMT -6)   
Wow!

Really good news. After all that worry that taking a biopsy would be a life-threatening exercise, they were able to get a lung sample fairly quickly, with a smaller incision than expected.

PLUS, Barbara was able to come off the ventilator first try, so no ICU for her!!

Too early for the pathology report, but here's hoping it is something they have a treatment for.
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
DIAGNOSING LUPUS & HW's LUPUS 101
"Life is far too important to be taken seriously." - Oscar Wilde

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 2/4/2016 1:56 PM (GMT -6)   
Wow! Glad she didn't need a big cut. Glad she's off the oxygen.

Thanks for the update.
Joy
Lupus, RA, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Depression, Allergies, diabetes, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 2/4/2016 8:06 PM (GMT -6)   
Many Continued prayers for you Barbara...any news of the surgery?
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* So many dx's I could write a book* "It would be nice if we could use the edit button in real life"...
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Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 2/4/2016 9:53 PM (GMT -6)   
As I posted earlier, the surgery to do a lung biopsy went fairly well and they were able to take a sample for further testing and evaluation.

It has, however, left Barbara with a chest tube into the wound site, which is VERY painful, so she really isn't able to talk on the phone or rest much. Her BP is shooting up, they think because of the pain. They are trying to provide her with enough pain relief, but that does mean she may be "out of it" for a couple of days until some healing can take place.

Post Edited (Lynnwood) : 2/4/2016 9:13:28 PM (GMT-7)


Lynnwood
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Date Joined May 2005
Total Posts : 7720
   Posted 2/5/2016 11:32 AM (GMT -6)   
Just passing this message along -

Hello all this is Nikita, Barbara's daughter. She is currently doing well. Her epidural is not working which is causing her pain to be outstanding. She currently has a chest tube in her side which is going through her lung. This is additionally causing pain. The tube will be removed once her nurses can successfully get her up and sitting in a chair. We will continue to update family and friends on her condition as we learn more information. If you have any questions please feel free to ask and I will answer with what updated information I have.

The majority of all updates coming from her phone will be coming from me, although she has possession of her phone so that she can call myself and my father if need be. Please try to avoid calling her at this time seeing as she is in a lot of pain and needs to be resting.

Thank you for all of the prayers and positive thoughts, they are truly appreciated and we are telling her all of your warm wishes. I will continue to update as we learn more. - Nikita

Post Edited (Lynnwood) : 2/6/2016 1:21:22 PM (GMT-7)


Jake'sMom
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Date Joined Jan 2015
Total Posts : 1066
   Posted 2/5/2016 2:00 PM (GMT -6)   
Barbara,

You are in my prayers. Thank you to the family for keeping us posted.

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 2/6/2016 8:27 AM (GMT -6)   
They were able to remove Barbara's chest tube Friday afternoon which greatly reduced her pain. She expects to be moved from ICU to a regular room sometime today. (Saturday)
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
DIAGNOSING LUPUS & HW's LUPUS 101
"Life is far too important to be taken seriously." - Oscar Wilde

UserANONYMOUS
Forum Moderator


Date Joined May 2011
Total Posts : 4481
   Posted 2/7/2016 11:18 PM (GMT -6)   
Glad to hear she's able to get a little pain relief.

Continued prayers for her...

UA
Moderator - Bipolar

Depression, Borderline Personality Disorder.
Chronic Pain - Cervical Kyphosis, Cervical Spondylosis, Thoracic Scoliosis.

starkiss
New Member


Date Joined Feb 2016
Total Posts : 3
   Posted 2/8/2016 1:15 PM (GMT -6)   
oh my goodness, i am praying for her. I am so sorry to hear she has gone through such an ordeal.

DianeB
Veteran Member


Date Joined May 2013
Total Posts : 1343
   Posted 2/9/2016 5:41 PM (GMT -6)   
Keeping you in my thoughts & prayers
Herniated cervical discs & other disc / spine issues, Arthritis, spurs
Injuries &/or pain to/in shoulders, elbows, wrists, knees, legs, ankles
Fibro / myofascial pain, neuralgia, neuritis

CassandraLee
Veteran Member


Date Joined Feb 2003
Total Posts : 900
   Posted 2/10/2016 10:16 PM (GMT -6)   
It has been quite awhile since we have chatted, but I am back and sending many prayers and positive thoughts your way.

Cass

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 2/11/2016 2:45 PM (GMT -6)   
Barbara made it home today (I think she escaped from the hospital like Super Woman in flight). Seems she will need to increase her normal oxygen to a higher level/different kind, but like a Timex watch (for those who remember the old ads) she keeps on ticking!

Barbara is hoping to have enough energy to post for herself in the next few days, if she isn't too busy trying to implement some increased medical support requirements for her home. (Motorized wheelchair to carry larger oxygen tanks?? You know, basic Super Woman tools.)

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 2/11/2016 11:19 PM (GMT -6)   
Yea, Barbara!

Hang in there. Treat yourself gentle, no smashing into walls now.
Joy
Lupus, RA, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Depression, Allergies, diabetes, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))
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