Welcome to Healing Well, Spoon Goddess. So sorry that your Lupus has been sneaking up on you "behind your back", so to say.
I think you made a wise choice by not going straight to Cytoxan. I think of our medications as being in "tiers".
3) Imuran, Cellcept, MTX
4) IVIG, Benylsta
Haven't heard of them using Cytoxan for most Lupies, but from what I know of it I'd put it in Tier 4.
Of the meds Imuran, Cellcept, and MTX - it seems to be hit-and-miss which of these 3 will work for each of us, it's very individual. I personally didn't see any improvement with Imuran (no bad results either), but others get remission. For me, Cellcept was a miracle drug. I think of these 3 fairly equally, so I count my success with Cellcept as a success for your drug, Imuran.
I had joint and muscle stiffness, pain and inflammation. I had almost daily GI distress. And worst of all, I had significant cognitive involvement. (Short explanation - loss of about
15 IQ points.) I couldn't carry on a conversation, I'd loose my thought in the middle of a sentence. I couldn't follow a 20-minute sitcom. Certainly couldn't do my work as a computer designer in a high-tech industry. Cellcept, within about
18 months, turned all that around. I have been mostly flare-free for several years now.
Other people have gotten similar results with Imuran, Cellcept, MTX -- hopefully Imuran will work for you, if not try Cellcept or MTX.
Best wishes, and keep us posted!
On another note, I've recently been having more and more right side issues -- they seem to start mid-back and render my right side very weak - hip, knee, and ankle, with foot tingling. I have a rheumy appt coming up and I wonder if I should ask for an investigation such as you have just had. What are your suggestions?
Thanks so much!
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002DIAGNOSING LUPUS & HW's LUPUS 101
"Life is far too important to be taken seriously." - Oscar Wilde