My day of whining.

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Date Joined May 2005
Total Posts : 7673
   Posted 2/9/2016 11:51 AM (GMT -6)   
Well, since my Lupus is mostly in remission, I seldom post about my personal health issues anymore. But today I feel the need to whine a bit -- just skip on over this if you want, I would!

Today I woke up with a horrid sinus/migraine headache. I seem to get these a lot recently, although usually they come about 7:30-8 pm. I don't have a Drs diagnosis for them, but taking 2 Sine Aid, 4 ibuprofen, and an Excedrin Migraine usually gives me some relief. Not so this morning. When this happens, I don't have trouble breathing, my sinus seem clear.... who knows?

I also woke up with a horrid tightness around my neck and shoulders. Maybe they got too cold last night and tensed up in my sleep? Dunno', but quite painful. Long hot shower has provided a modicum of relief. Don't have a muscle relaxer around (some coming from my mail-order pharmacy), so am waiting to see if my pain medication, Norco, helps any.

On Dec 22, I had MOHS surgery to remove a small skin cancer from my face - right at the high point of my cheek bone. Although it looks fairly well healed, it's left a nasty scar. Discolored with a raised lump of shiny scar tissue in the middle. I fear I will have to have some plastic surgery to reconstruct the area. It really looks nasty right now.

I've also been having some lab work that shows higher-than-one-wants blood sugar levels... so I've been trying to lay off the carbs, and pull back on the Dr Pepper addiction. Boy, the sugar/caffeine/carbonation is really hard to kick! And I'm not one who cares much about cooking, so eating better is difficult. Now have a blood sugar meter sitting on my desk. Lovely addition to the family.

Turns out, after some digging, that my somewhat-elevated cholesterol levels are also related to carbs & sugar. And of course, the carbs-n-sugar diet is a direct result of 5-7 years of prednisone, even if it was low dose. I really, really wish they'd hand you some dietary guidelines when they prescribe long-term prednisone.

Before Lupus I was a marathon runner -- so I've been trying to walk more & run a little to help with weight loss. I've had tingling in the bottom of my foot on & off for months, and mentioned it in my every-6-month rheumy appointment yesterday. My mind, of course, had the tingling related to everything from Lupus inflammation, to diabetic neuropathy, to who-knows-what. Rheumy thinks it's Plantar Fasciitis, and referred me along to my Podiatrist. Maybe it is, but I've had Plantar Fasciitis before, and the tingling has never been one of my symptoms.

Also having intermittent Achilles Tendon issues and tight Hip Flexors on the same side as my tingling foot. Sigh. Not looking forward to orthotics, if that's what they want to do. I've always heard that they are hard and uncomfortable... can't see how that would help. All this may also mean my hip bursitis is back.

So that is the list of physical woes for the day. If you're still reading, my mind isn't in the right place, either. I live in the middle of a huge metropolitan area, and would really like to be in a small town - but my "significant other" has no intentions of ever thinking about the possibility of moving.

My car is really low mileage, due to Lupus keeping me from driving for 3-4 years, so financially it's stupid to change cars -- but the darn thing has a leak in the trunk nobody can seem to fix. Seems like every time I check (even when it hasn't been raining!!!) there are two inches of water back there to be bailed out.

So, I think that's it. I suppose if I was still able to work, I wouldn't be focusing on all this stuff (and I usually don't) but am particularly vulnerable right now. A friend entered hospice last week, another is very ill.

Aw, well... This too shall pass, thanks for reading!

Mrs. Brady
Regular Member

Date Joined Feb 2015
Total Posts : 234
   Posted 2/9/2016 2:43 PM (GMT -6)   
Lynnwood, so sorry to hear about your issues. I hope you feel better soon! Feel free to vent away, I get it and it's nice to have an outlet that you can do so in (you are not 'whining' btw :) ). I think we sometimes let it all build up and then it becomes overwhelming - at least that's what happens to me and then it's like somebody opened Pandora's box and watch out world or specifically my husband who hears/feels the brunt of it.

Just a couple of things that "hopefully" will help. Have you asked the dermo about laser treatment on the scar? Not sure if it will help if it is raised but it will lighten the discoloration - I had it done and it takes a few treatments but the scar is nearly invisible now. In regards to the orthotics, I am on my second pair and you need to break your feet in by wearing them for an hour one day, 2 the next and so on and they make a world of difference. My daughter has them too after having surgery on both of her feet (she is 17) and she can't live without them. Give them a try, I think once you get used to them they might help. Please, please make sure you eat before taking the ibuprofen and excedrin for the sake of your GI system.

Can't offer any more advice but know that I feel for you and hope you feel better soon!
Hoshimoto's Hypothyroidism DX Oct 1997
Left Sided UC DX Nov 2013
GERD DX Nov 2013
SLE, DX Sept 2015
Medications - Synthroid, Hydrocort Enemas; Prilosec; Poly-Iron 150 Forte; Plaquenil; Vitamin D
Past Meds: Lialda - developed severe joint pain, initial DX DILE, discontinued mesalamine, symptoms subsided but returned - less severe, DX SLE

Elite Member

Date Joined Jul 2009
Total Posts : 14475
   Posted 2/9/2016 10:41 PM (GMT -6)   
Go ahead and whine. Sometimes it's the best thing to let off some steam.
Lupus, RA, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Depression, Allergies, diabetes, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

Regular Member

Date Joined Jan 2014
Total Posts : 360
   Posted 2/10/2016 8:42 AM (GMT -6)   
Aww Lynwood, I feel your pain... some of it literally lol. I recently went to see a muscle/connective tissue specialist (I didn't even know they existed, my rheumy did the referral) and he was brilliant. It turns out my years of hip pain were not bursitis but enthesopathy which is inflammation in the tendons that attach to stuff (sorry, foggy brain day today). He's a physiatrist. I don't know if you have any physiatrists where you are but it might be worth a little digging. Or a doctor of physiatry or physical medicine.

Sending hugs, as you say this too shall pass. I say that often myself ;)
Be who you are and say what you feel because those who mind don't matter and those who matter don't mind - Dr. Seuss

Forum Moderator

Date Joined May 2005
Total Posts : 7673
   Posted 2/10/2016 10:26 AM (GMT -6)   
Enthesopathy - sounds interesting. From what I read (in a quick 10 minute Internet scan) treatment is NSAIDS & possibly MTX. I do have lots of joints that would qualify... lol.

Thanks, everyone, for your support.
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
"Life is far too important to be taken seriously." - Oscar Wilde

Veteran Member

Date Joined Jan 2015
Total Posts : 1066
   Posted 2/10/2016 1:12 PM (GMT -6)   
I hope today is better for you. It gets overwhelming sometimes.

Sending comforting thoughts your way.

Regular Member

Date Joined May 2007
Total Posts : 482
   Posted 2/11/2016 12:31 AM (GMT -6)   
Lynnwood, I am so sorry to hear of your troubles. Hope things are improving! You are always offering such positive thoughts to all of us, so it's our turn to send positive thoughts your way.
Take care, Fran

Veteran Member

Date Joined Apr 2006
Total Posts : 1335
   Posted 2/11/2016 4:42 PM (GMT -6)   

Sorry you are having so many problems. In regard to plantar fasciitis supporting the arch is the most important thing and you can buy some decent ready made insoles that are comfortable and supportive. I would try one before going through the custom stuff. Had the same problem and a combination of supporting my arch and lost of stretching....hamstrings, calves and Achilles tendons eventually did the trick. Your Achilles issues are interrelated to PF.

Had MOHs surgery 5x in recent years and some take a long time to heal. I have had both skin and cartilage grafts and those take longer. Got a staff infection the last time but had the sense to see the doc immediately and antibiotics took care of it and it healed ok. Mine were on my ears, face, and hairline and probably caused by being in the sun a lot when younger. Or it could have been precipitated by taking azathioprine for 5 years. Who knows?

I used to be a 5-6 day a week runner but did not compete. My running was always for conditioning but I did run long distances until a mountain climbing knee accident. No more running due to that, old age, and having less muscle from polymyositis. Life is not fair but at least I can still ski and did so today. So I guess life is pretty good considering what I have gone through the past 11 years.

Hope thing settle down for you.

MCTD (SLE Lupus, polymyositis, scleroderma). Diagnosed 2005. Kidney, liver, GI tract, dysphagia, raynauds, barretts esophagus, quadriplegic in 2005. Recovered and now active in downhill skiing, golf, hiking. Meds: amlodipine, benezapril, omeprazole, potassium, folic acid, vitamins, maxide.

Remain Optimistic and you can overcome.
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