Lupus with possible start of lupus nephritis?

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jbmigon
New Member


Date Joined Apr 2013
Total Posts : 4
   Posted 2/15/2016 12:37 PM (GMT -6)   
Hi, I am new to thisforum and this is my first time posting. So here goes..short overview... I was diagnosed with Lupus in 2012. Since then have been diagnosed with Raynauds, Vasculitus, Antiphospholipid, Diverticulitis and Barretts Esophogus. I had partial hysterectomy in 2013 due to excessive menstrual bleeding over 1 month and a prolapse uterus. Needless to say no more menstrual cycles after that.since 2012 I have been getting flares 1 to 2 times a year always affecting my vision first then fatigue and sore, inflamed muscles and aches. Seems like whenever weather changes. Ever since the hysterectomy I have had consistent blood in my urine. It would go from 10 to 25 to as high as 50 and very u few times no blood in urine. My primary doctor did not seem concerned. He did send me for ultrasound which w as normal. My last blood test was normal in every category. My creatine was .72, my bun was 7 and my gfr was 87. My urinalysis for the first time showed no blood but had a protein result of 25, rbc's of 9, wbc's of 4, epitheleal cells of 9 and bacteria of 2+. I have had feelings of nausea primarily in the morning on my way into work. I would suck on some peppermint and it would gradually go away. My urine output has dramatically decreasrd. I don't even feel like I have to go when I wake up in morning. This has been going on for over a month, I just thought I wasn't drinking enough. I have right flank cramping, no fever, no vomiting just feeling of malaise on and off. Should I be concrrned it might be lupus nephritis and what should I expect from doctor when I follow up with him tomorrow? Any guidance help would be greatly appreciated. Sorry for the long dicertation.

Lynnwood
Veteran Member


Date Joined May 2005
Total Posts : 7725
   Posted 2/15/2016 4:16 PM (GMT -6)   
I'm not sure I'd be worrying about Lupus Nephritis just yet, let's leave the diagnosing to the Dr.

Is it your GP, your GYN, or your Lupus Dr you will be seeing tomorrow? Whichever it is, make sure you tell them everything you mentioned above.

Sometimes I think our bodies just decide to "do something different" as far as urine goes. I went on a vacation a few weeks ago -- I was drinking a lot less water than at home, yet I had to pee every 10 minutes -- much more than when home! Not everything makes sense.

When you do have to urinate, if your urine is clear it's likely everything is fine. While you are waiting to talk to a Dr, make sure your water input is high enough. Try not to worry or get ahead of yourself, but do follow up.
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
DIAGNOSING LUPUS & HW's LUPUS 101
"Life is far too important to be taken seriously." - Oscar Wilde

jbmigon
New Member


Date Joined Apr 2013
Total Posts : 4
   Posted 2/15/2016 5:33 PM (GMT -6)   
Thank you so much for your response. It is my primary care physician. I see the rheumatologist in May for my 6 mth check up. I will try not to spa and let them figure it out : )

kateelizabeth933
New Member


Date Joined Feb 2016
Total Posts : 7
   Posted 2/17/2016 6:13 AM (GMT -6)   
What ultrasound did he send you for? Kidney? It could be small kidney stones buliding up but not quite visible. It could cause blood in your urine. I don't think it's nephritis because they're would be dramatic drops in labs. And you would be in pretty bad pain. So I would look for more mild causes like small kidney stones. It could also be a build up of water that's not coming out have them check extremities for edema sometimes water can build up and not flush out which can put some strain on the kidneys and the body all together and since its at the change of season that could be causing your body to slow down a bit. In my experience with lupus it's never what you think it is because there's so much we don't know about the disease and how the body reacts. Good luck Hun.

jbmigon
New Member


Date Joined Apr 2013
Total Posts : 4
   Posted 2/18/2016 11:31 AM (GMT -6)   
Thank you for your response : ). He has set me up for an ultrasound of both kidneys. He said he is concerned about my left kidney. He is having me do another urinalysis as well. I will just wait and see, I have learned symptoms come and go so I just usually just wait it out! You take care as well.
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