Lupus and Myasthenia gravis

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New Member

Date Joined Feb 2016
Total Posts : 1
   Posted 2/20/2016 3:54 PM (GMT -6)   
I am 29 years old and I was diagnosed with myasthenia gravis since 2007. After surgery I went into remission and I have never had problems. 4-5 years ago I started to have terrible back pain. I did all sorts of physiotherapy, MRI ... nobody could tell me why it hurt so much my middle back (the bra area). A few months ago the pain was so bad I couldn't get any sleep at night ... I tried again to find out what was happening: I did all kinds of MRI and blood tests. Excluding ankylosing spondylitis and rheumatoid arthritis, the Dr explained that I present a high risk to do in the future lupus because the tests came out very positive ... The irony is that I don't have any symptoms of lupus. But the Dr recommended to take Planquenil to reduce the antibodies specially cause I want to have a baby soon. But I was reading about the side effects so I don't know if I should start the treatment. Specially because I don't really think it's lupus. I don't have ANY symptoms just the blood tests that came very positive for lupus.
And again, like in the past Dr said that the back pain is something mechanical and they gave me to take anti-inflammatory that does not help and do exercises ... I feel like crying with pain.
It is possible that this back pain to be correlated with lupus (if I really have lupus)? Or you have other ideas? I do not know which way to head, who to ask to find out what is happening with me. Two autoimmune diseases gives me a hard time ...
Did you know this kind of situation? No symptoms but with very positive blood tests? Should I start the treatment? Thank you!

Elite Member

Date Joined Jul 2009
Total Posts : 14475
   Posted 2/20/2016 5:39 PM (GMT -6)   
Lupus is diagnosed with a list of 11 indicators. You must meet 4 out of the 11 to have it. Positive blood work is only 1 of the 11.

You can have positive blood work but not have lupus.

If your doctor is basing only on blood work then get a second opinion. Has he considered fibromyalgia?
Lupus, RA, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Depression, Allergies, diabetes, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))
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