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New Member

Date Joined Feb 2016
Total Posts : 3
   Posted 2/25/2016 10:30 AM (GMT -6)   
My name is Carol some of you know me as Okie, others wouldn't know me at all. Its been quite a while since I posted here. I have been coming here to look around and see if there is an update on Barb. I spoke to Nikita yesterday and to Barb yesterday morning. We talk every day and I am very concerned because she is not getting any better at all.
As for myself I do not have Lupus but this is the closest I can get because I have scleroderma. I am 58 years old and I have been sick for about 20 years. Pain management told me I looked pretty good for as long as I have been sick. I do feel blessed. I jst moved back here to Oklahoma a few months ago. I moved out to Arizona to be with my mom. I lost her in October. Its been an uphill battle. But I'm still fighting. Well anyway just wanted to say hello and I hope you have a great day!

Regular Member

Date Joined May 2007
Total Posts : 482
   Posted 2/25/2016 12:10 PM (GMT -6)   
Hello Carol! I remember you from your "Okie" days.
I am sorry for the loss of your mother.
Thoughts and prayers are with you.
Take care, Fran

New Member

Date Joined Feb 2016
Total Posts : 3
   Posted 2/25/2016 5:16 PM (GMT -6)   
Hi Fran oh yeah I remember you too. thank you for your thoughts and prayers. She is still on my mind daily but it is getting better. Many blessings

scleroderma, pulmonary fibrosis, chronic pain, congestive heart failure.

Melissa D.
Regular Member

Date Joined Aug 2008
Total Posts : 451
   Posted 2/27/2016 8:59 PM (GMT -6)   
Hi Carol,

Welcome back, I remember you being an Okie, I live in Texas and my husband is originally an Okie! Sorry to hear about your Mom, please accept my condolences. Thank you for the update on Barb, she has been in my thoughts and prayers daily. That's awesome that y'all are able to speak daily, I'm sure she totally appreciates your friendship, I know I would appreciate someone checking on me if I were in that situation.


Married the love of my life, mother of 2 beautiful adult children, 1 amazing daughter in law, and 1 grandson who is truly a gift from God! lupus SLE 1996, sjorgrens, raynauds. My worst nightmare was imagined when my son was diagnosed with RA and lupus NPSLE at 19. I try to live life as though everyday is a blessing, otherwise it would be hard to put one foot in front of the other...hugs

Veteran Member

Date Joined Jun 2006
Total Posts : 1650
   Posted 2/29/2016 3:04 PM (GMT -6)   
Hi Carol. I remember you well! It's so nice of you to check in with us and I hope you continue to post. I'm not the best at posting, but I read lots and I'm trying to post more often. Like you, I'm 58 and have been sick for years. I don't know if you remember Barb's analogy of us crossing many bridges, short and long. I'm currently trying to cross a long bridge and look forward to reaching the end and getting a break from these crappy diseases!!!

It's so good to hear from you and please let us know how you're feeling! Love, Butterflake (Donna)
SLE '05, Sjogrens, fibro, Raynaud's, major depressive disorder, CNS problems, GERD, angina, 1st stage kidney disease. Many meds: better living through chemistry
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