Susie, I'm curious, how is your crohn's/colitis now? What type of treatment are you on? Hope you have found some relief, these diseases really stink! That is my biggest fear about the meds is the lupus. For me, when I had my first bad UC flare I was going 20+ times per day, however, I would take that over the lupus pains. I just fear going back to the spot where I could barely walk, open doors, get dressed by myself, etc. you get it....the joint pains were debilitating. Going to the bathroom every hour on the hour was horrible but at least I could function for the 45 minutes between trips, with the lupus I was absolutely miserable. I feel like a medical oddity with these two conditions, my GI has 5000 patients and not one has lupus. It's so frustrating to know what the right course of action should be. Thanks everyone for your input, I really appreciate it!
Hoshimoto's Hypothyroidism DX Oct 1997
Left Sided UC DX Nov 2013
Pancolitis DX Feb, 2016
GERD DX Nov 2013
SLE, DX Sept 2015
Medications - Synthroid, Hydrocort Enemas; Prilosec; Poly-Iron 150 Forte; Plaquenil; Vitamin D; Imuran
Past Meds: Lialda - developed severe joint pain, initial DX DILE, discontinued mesalamine, symptoms subsided but returned - less severe, DX SLE