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Lisabeans
Regular Member


Date Joined Jun 2015
Total Posts : 144
   Posted 3/11/2016 11:47 AM (GMT -6)   
Hope all is well with everyone. I did see my primary doctor yesterday in response to my face getting flushed and hot. He feels it could be related to autoimmune stuff I have going on. He wants me to go on a vegan diet for a month to see if that helps. Has anyone every gone vegan and felt better? Any suggestions for someone who is picky and loves chicken? Thanks in advance. This group is amazing.
Lisa
Ulcerative Colitis (remission) on lilada
Reflux on dexilant
Recently low positive ana and now on plaquinal

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7699
   Posted 3/11/2016 11:57 AM (GMT -6)   
I haven't heard of a Dr recommending that 'treatment' for autoimmune disorders.

I do know that there are some foods that are better or worse for inflammation. Inflammation is a huge part of an autoimmune issue, and may be part of why your face is getting flushed/hot.

Hot/flushed face is also associated with many thyroid disorders, as well as with menopause. Did your Dr do any tests?

If you've ever looked at the main reference on Lupus, "The Lupus Book: A Guide for Patients and Their Families" by Dr Daniel Wallace, you'll see that many of us have actual allergies to legumes -- and as I understand it legumes (beans) are the main source of protein in a vegan diet. For that reason, (plus I actually hate legumes,) I would never try a month on a vegan diet.

I think I'd consider using organic chicken/beef (to avoid hormones & other additives) before I'd go vegan. Just my $.02.
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
DIAGNOSING LUPUS & HW's LUPUS 101
"Life is far too important to be taken seriously." - Oscar Wilde

Post Edited (Lynnwood) : 3/11/2016 11:12:04 AM (GMT-7)


Mrs. Brady
Regular Member


Date Joined Feb 2015
Total Posts : 238
   Posted 3/11/2016 12:18 PM (GMT -6)   
I have never heard of that as a treatment either. If it were me, I'd be extremely cautious in making extreme diet changes with UC, especially if it's in remission unless you don't have any food intolerances. I second what Lynnwood said about using organic and maybe try to cut out foods with a lot of additives or preservatives.
Hoshimoto's Hypothyroidism DX Oct 1997
Left Sided UC DX Nov 2013
Pancolitis DX Feb, 2016
GERD DX Nov 2013
SLE, DX Sept 2015
Medications - Synthroid, Hydrocort Enemas; Prilosec; Poly-Iron 150 Forte; Plaquenil; Vitamin D; Imuran
Past Meds: Lialda - developed severe joint pain, initial DX DILE, discontinued mesalamine, symptoms subsided but returned - less severe, DX SLE

Lisabeans
Regular Member


Date Joined Jun 2015
Total Posts : 144
   Posted 3/11/2016 1:29 PM (GMT -6)   
The redness in my face only comes in the sun or certain lights like in Target. I get very dizzy, nauseous and feel like passing out. No tests have been done. I really hate this Rollercoaster ride right now. I know you have to rule out other conditions before getting a good diagnosis. It is just frustrating.

Thanks for all your input. Glad to know I am not alone in this journey.
Lisa
Ulcerative Colitis (remission) on lilada
Reflux on dexilant
Recently low positive ana and now on plaquinal

Mrs. Brady
Regular Member


Date Joined Feb 2015
Total Posts : 238
   Posted 3/11/2016 1:44 PM (GMT -6)   
It sounds like you are having a reaction to the UV lights as well as the sun which is pretty common for lupus patients. I don't have that issue "yet" but I know I have seen recommendations on here regarding clothes that help protect from the UV rays, I think there's a company called Coolibar that sells them. I have also seen that some wear hats and long sleeves to protect themselves. Hopefully somebody else can chime in with their thoughts/recommendations. Sorry I can't be of more help, but I don't think a change in diet will help.

Mrs. Brady
Regular Member


Date Joined Feb 2015
Total Posts : 238
   Posted 3/11/2016 1:58 PM (GMT -6)   
Lisa, how long have you been on Lialda and when did you start getting joint pain in relation to taking the Lialda?
Hoshimoto's Hypothyroidism DX Oct 1997
Left Sided UC DX Nov 2013
Pancolitis DX Feb, 2016
GERD DX Nov 2013
SLE, DX Sept 2015
Medications - Synthroid, Hydrocort Enemas; Prilosec; Poly-Iron 150 Forte; Plaquenil; Vitamin D; Imuran
Past Meds: Lialda - developed severe joint pain, initial DX DILE, discontinued mesalamine, symptoms subsided but returned - less severe, DX SLE

Lisabeans
Regular Member


Date Joined Jun 2015
Total Posts : 144
   Posted 3/11/2016 2:01 PM (GMT -6)   
I have been on lialda for 8 years. My joint pain started real bad last April so 7 years after starting lialda.
Lisa
Ulcerative Colitis (remission) on lilada
Reflux on dexilant
Recently low positive ana and now on plaquinal

Mrs. Brady
Regular Member


Date Joined Feb 2015
Total Posts : 238
   Posted 3/11/2016 2:05 PM (GMT -6)   
OK, just curious as I started having lupus joint pain within 2 months of starting Lialda. Not sure if it was the Lialda that triggered the lupus, caused it or was a complete coincidence. Hope you feel better soon!
Hoshimoto's Hypothyroidism DX Oct 1997
Left Sided UC DX Nov 2013
Pancolitis DX Feb, 2016
GERD DX Nov 2013
SLE, DX Sept 2015
Medications - Synthroid, Hydrocort Enemas; Prilosec; Poly-Iron 150 Forte; Plaquenil; Vitamin D; Imuran
Past Meds: Lialda - developed severe joint pain, initial DX DILE, discontinued mesalamine, symptoms subsided but returned - less severe, DX SLE

Lisabeans
Regular Member


Date Joined Jun 2015
Total Posts : 144
   Posted 3/11/2016 2:10 PM (GMT -6)   
Not one of my doctors said lialda could trigger uc but they have said that uc could cause inflammatory joint pain.
Lisa
Ulcerative Colitis (remission) on lilada
Reflux on dexilant
Recently low positive ana and now on plaquinal

Mrs. Brady
Regular Member


Date Joined Feb 2015
Total Posts : 238
   Posted 3/11/2016 2:24 PM (GMT -6)   
My GI was convinced that the lialda wasn't causing the joint pains either and I have since switched to a new GI and he initially said the same thing but he is slowly changing his mind but my rheumy isn't sure. At first my GI told me that the UC could cause joint pains and I ignored it for several months until it got to the point where I wasn't able to function - as in open a door handle. I just knew, for me, that there was something else going on and finally pursued it. I still can't definitively say if it was the lialda or not but when I stopped taking it I felt better for a while and then the pain came back but it wasn't as severe. Who knows, this disease is so complicated and really stinks! In any event, I hope you find some relief soon, I know what you are going through.
Hoshimoto's Hypothyroidism DX Oct 1997
Left Sided UC DX Nov 2013
Pancolitis DX Feb, 2016
GERD DX Nov 2013
SLE, DX Sept 2015
Medications - Synthroid, Hydrocort Enemas; Prilosec; Poly-Iron 150 Forte; Plaquenil; Vitamin D; Imuran
Past Meds: Lialda - developed severe joint pain, initial DX DILE, discontinued mesalamine, symptoms subsided but returned - less severe, DX SLE

eat2bwell
Veteran Member


Date Joined Sep 2014
Total Posts : 534
   Posted 3/11/2016 2:31 PM (GMT -6)   
All drugs have side effects and doctor do not normally tell you about them. If you started taking a medicine and suddenly have strange symptoms suspect a side effect. Going on vegan diet is an attempt to alkalize the body. Fruits and vegetables are alkalizing while meat and process foods are acidic. Your body needs to be alkaline in order to be healthy. Diet is the most important thing for getting health back.

http://www.drugs.com/sfx/lialda-side-effects.html

Lisabeans
Regular Member


Date Joined Jun 2015
Total Posts : 144
   Posted 3/11/2016 2:31 PM (GMT -6)   
Prayers are with you too. This is so hard and no one really understands what we are feeling. So glad I found this site.
Lisa
Ulcerative Colitis (remission) on lilada
Reflux on dexilant
Recently low positive ana and now on plaquinal

Mrs. Brady
Regular Member


Date Joined Feb 2015
Total Posts : 238
   Posted 3/11/2016 2:42 PM (GMT -6)   
Thanks! I am so glad I found site too. I have learned more from this site than any where else. You are right, people try to understand but they just can't and I guess if I wasn't go through it I would probably have a hard time understanding it too! Hope you have a great week-end!
Hoshimoto's Hypothyroidism DX Oct 1997
Left Sided UC DX Nov 2013
Pancolitis DX Feb, 2016
GERD DX Nov 2013
SLE, DX Sept 2015
Medications - Synthroid, Hydrocort Enemas; Prilosec; Poly-Iron 150 Forte; Plaquenil; Vitamin D; Imuran
Past Meds: Lialda - developed severe joint pain, initial DX DILE, discontinued mesalamine, symptoms subsided but returned - less severe, DX SLE

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 3/12/2016 9:47 PM (GMT -6)   
My face gets red like you described in UV rays. Sunlight, fluorescent lighting, halogen lighting, and CF bulbs all emit UV Rays.

I wear clothing from coolibar.com. They sell wonderful lightweight long sleeve T-shirts. They have built in sun protection. I've got a lovely bucket hat from them too.
Joy
Lupus, RA, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Depression, Allergies, diabetes, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))
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