It's really unfortunate that SLE is so hard to diagnose and it often takes a very long time to get a diagnosis. It took just over two years for me to be diagnosed and I too felt like I was losing my mind and the entire life I previously had. All I could do was work, eat, bathe, sleep, repeat. I attempted suicide once, but my psychiatrist keep me going and I didn't give up. Eventually my anti-double stranded DNA blood test became positive and with other symptoms I was diagnosed with SLE.
I'm no physician and sure don't know if you have lupus, but keep seeing those docs and try to keep an open mind to everything each one says. Oh, also get a complete copy of your medical records from each doc. It is helpful for you to review as you go and can be very helpful if you need to apply for disability years down the road. Love, Butterflake
SLE '05, Sjogrens, fibro, Raynaud's, major depressive disorder, CNS problems, GERD, angina, 1st stage kidney disease. Many meds: better living through chemistry