Have I got lupas help?

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TommyBaker1
New Member


Date Joined Feb 2015
Total Posts : 15
   Posted 3/14/2016 5:28 AM (GMT -6)   
My symptoms are
Dry mouth and eyes
Sore red inside nostrils,painful.
Painful joints and neck
Body aches through night
Red blotchy sore face in sunshine
Fatige- can be ok one second then knocked off my feet the next.
Low white blood cells and platelets.
Cold hands and feet a lot
Sore boils on back and swollen lymph nodes right side of neck.
Memory and concentration problems
Now Ive started becoming very depressed with it all. Can break down for literally nothing which i find very embarrasing as Im a macho male 38.i asked my doctor about it but he said my bloods dont show the signs. Im awaiting to see an imunologist at the QE to hopefully get my answers. Any help will be appreciated.

Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1650
   Posted 3/14/2016 7:15 AM (GMT -6)   
Hi TommyBaker1. At the top of our Lupus posts is a resource called Lupus 101. It has lots of useful info including the link to the Lupus Foundation (lupus.org) which lists the eleven criteria rheumatologists use to diagnose lupus. If you feel you meet the criteria you should probably make an appointment with a rheumatologist. They are the physicians who treat Lupus. Sometimes it takes months to even years before a diagnosis can be reached. In the mean time, you may want to talk to your doc about getting an antidepressant. Lots of us take them, so try not to be ashamed. Love, Butterflake
SLE '05, Sjogrens, fibro, Raynaud's, major depressive disorder, CNS problems, GERD, angina, 1st stage kidney disease. Many meds: better living through chemistry

TommyBaker1
New Member


Date Joined Feb 2015
Total Posts : 15
   Posted 3/14/2016 9:19 AM (GMT -6)   
Thanks for the reply. Ive just looked and I match about 80% of the symptoms. Ive been ill for 14 months now and no closer to finding out why. Maybe this next appointment will shed more light. I actually feel like Im losing my mind and 90% of my old self has gone.

Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1650
   Posted 3/14/2016 7:37 PM (GMT -6)   
It's really unfortunate that SLE is so hard to diagnose and it often takes a very long time to get a diagnosis. It took just over two years for me to be diagnosed and I too felt like I was losing my mind and the entire life I previously had. All I could do was work, eat, bathe, sleep, repeat. I attempted suicide once, but my psychiatrist keep me going and I didn't give up. Eventually my anti-double stranded DNA blood test became positive and with other symptoms I was diagnosed with SLE.

I'm no physician and sure don't know if you have lupus, but keep seeing those docs and try to keep an open mind to everything each one says. Oh, also get a complete copy of your medical records from each doc. It is helpful for you to review as you go and can be very helpful if you need to apply for disability years down the road. Love, Butterflake
SLE '05, Sjogrens, fibro, Raynaud's, major depressive disorder, CNS problems, GERD, angina, 1st stage kidney disease. Many meds: better living through chemistry
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