Hi Melissa D. I'm sorry I didn't read your post sooner. I had IVIG Sunday. My pre-meds were oral Tylenol 650 mg, IV Benedryl, and IV hydrocortisone, but NOT solumedrol. I found a good magazine/web site in the waiting room called IGLiving.com that you might find interesting.
The first couple of infusions wiped me out, but then I also started Benlysta infusions and I could no longer tell which was causing me to feel awful (so exhausted, tired, fatigued, other adjectives). My IVIG infusion Sunday took 3 1/2 hours and I slept the entire time, even when my attending nurse hooked up my second bottle. Later at home I took a 3 hour nap, slept 'til 11:00 today and had a fairly productive day by my standards. Thought I'd check the forum before bed.
Sweetie, if you don't feel comfortable with taking this, you really should sit down with your doc and tell him. Also, you need to ask him to spell out why he thinks you should take IVIG. Keep us posted, okay? Love, Butterflake
SLE '05, Sjogrens, fibro, Raynaud's, major depressive disorder, CNS problems, GERD, angina, 1st stage kidney disease. Many meds: better living through chemistry