Hi there, it's the deli creep. I don't really know where or how to start with all of this so I suppose I'll start with the first onset of symptoms. I've been allergic to the sun for as long as I can remember and have had mouth sores since about age 10.
about 4 months ago, after dealing with about a year of gradually worsening fatigue, I noticed that I had been running a low-grade fever for a little too long to be considered... Erhmm.. Normal. It had been 3 weeks, running from 99.6-~101. I noticed just a few days after that, to my horror, there was an extremely thinned patch of hair near the top of my head. It was sore to the touch. It's been a swift, downhill slide from there.
Fast-forward to now and I have had a malar rash on my face twice, when everything else gets worse including my hair thinning, fever spiking, sun sensitivity worsening, cold intolerance, a rash that looks like livedo reticularis, a scalp so sore I can't lay my head down, and the inability to function for more than 6-8 hours at a time, my fingernails look WACK, and mouth sores galore.
I just recently got Medicaid and I'm losing it May 1st. I've been to a primary doctor and she was ready to test my ANA, c3, c4, sed (?) rate for my inflammation, and also every other autoimmune disease since she knew time was of the essence and it was better to be safe than sorry. Well everything came back normal but she referred me to a rheumatologist anyhow. He wasn't very receptive but did diagnose me with Reynaud's. In light of everything going on, he ruled it unrelated. He ran my ANA, c3&4 once again and.. All normal.
I have a new bald spot even worse than the one before (completely hairless and smooth), fever is at a constant ~100 (not the worst but still), I wake up tired and weak, I'm dizzy, my right arm falls numb and cold while I'm asleep.. Everything else has been taken up a notch or two.
Dr gave me amitriptyline and has sent off more blood work for my vitamin D, b12, and iron levels. She said she's seen this many times before and my ANA (among other things) will eventually turn up abnormal and we can finally move on from there and she's frustrated for me and this is the best she can do for general pain and fatigue.
There's more to this story but I know I've already overloaded.