Facial Numbness / Tightness and Tingling Fingers related to UCTD?

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Babybluegurl87
New Member


Date Joined Sep 2015
Total Posts : 10
   Posted 5/17/2016 11:15 AM (GMT -6)   
Hello,

I'm not sure if my last post went through or not. But I was diagnosed with UCTD and EM (erythromelalgia) last year. Right now I take (2) hydroxychloroquine tablets daily and (2) Gabapentin for my neuropathy pain associated with the EM.

This morning my face went numb and tingly. Now, the jawline is tight when I try to open my mouth. My fingers are also slightly tingly. Has anyone else experienced this? Is this something a MRI is necessary for? Just looking for answers.

Thanks so much for listening. confused

Lynnwood
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Date Joined May 2005
Total Posts : 7725
   Posted 5/17/2016 12:30 PM (GMT -6)   
I don't want to alarm you , but have you reviewed the symptoms of a heart attack? Isn't there tingling in face & down the arm in some cases?

My Lupus can cause just about anything to randomly become tingling - if it's in a new area or seems dramatic or lasts more than a few days, I'd suggest visiting your UCTD Dr for more analysis.

Hope you feel better soon,
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
DIAGNOSING LUPUS & HW's LUPUS 101
"Life is far too important to be taken seriously." - Oscar Wilde

Babybluegurl87
New Member


Date Joined Sep 2015
Total Posts : 10
   Posted 5/17/2016 1:35 PM (GMT -6)   
Thanks for your response! I hope it isn't anything to do with heart related issues. I am certainly going to monitor my symptoms and if they get worse tonight, I'll definitely go in to get checked out.

Is there a possibility it could be MS or something? I did some research (which is never a good idea) and articles online talked about facial numbness / tingling as their first symptom of it... I hope that's way off too. I also read about CNS Lupus? Maybe it's affecting the central nervous system somehow?

I contacted my rheumatologist so hopefully he can give me some insight as to what the next step will be from here.

Lynnwood
Veteran Member


Date Joined May 2005
Total Posts : 7725
   Posted 5/17/2016 1:59 PM (GMT -6)   
Of course, there is always the possibility it could be something else, MS or what have you. But often as we get symptoms they are only new symptoms of something we've already been diagnosed with.

And sorry, but I can only speak to Lupus, and we aren't Drs. No more idea if your symptoms match MS or whatever than you!

I think visiting your rheumy is an excellent idea!
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
DIAGNOSING LUPUS & HW's LUPUS 101
"Life is far too important to be taken seriously." - Oscar Wilde
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