Extreme sunny and facial pain

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cilly
Veteran Member


Date Joined Aug 2014
Total Posts : 1526
   Posted 5/24/2016 9:08 PM (GMT -6)   
Having a flare up due to sunshine,does anyone relate to me.

Extreme pain and burning plus itching.Have applied antihistamine cream and taken one Claritin.

It's very painful and no redness yet.

This is very very disabling for me .

Can't seem to walk in sun at all.


cry

Melissa D.
Regular Member


Date Joined Aug 2008
Total Posts : 451
   Posted 5/24/2016 9:49 PM (GMT -6)   
Sun is one of our worst enemies as lupus and if you're not in a flare can send you into one. I use Obligie Sunscreen SPF 50, it's a bit on the expensive side, but it's awesome. Doctors have researched there really is no need for more than SPF 50 if you have the right spectrums, apply enough and often.

I also never go out no matter what time of year unless I am fully covered head to toe, because I get so sick from even UVA/B lighting put off from fluorescent lighting in stores.

I have absolutely learned all of this from experiencing the trials and tribulations of what you are describing.

Hugs,
Melissa

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 5/24/2016 11:47 PM (GMT -6)   
I'm like that. I buy my clothes with built in sunblock. You can find them at any outdoors supply place or my personal favorite coolibar.com.

I buy their tees and hats. I even wear their gloves.
Joy
Lupus, RA, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Depression, Allergies, diabetes, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

cilly
Veteran Member


Date Joined Aug 2014
Total Posts : 1526
   Posted 5/27/2016 9:47 AM (GMT -6)   
Sunlight exposure ,spicy food is major trigger for me .

Trying to stay indoors when it's sunny and taking antihistamine.

Might have to go to planquenil during flares otherwise.

Clothes with SPf are extremely expensive for me ,might try when I have a job.

Skin is damaged from so many flares...
Cilly

Lynnwood
Veteran Member


Date Joined May 2005
Total Posts : 7723
   Posted 5/27/2016 10:21 AM (GMT -6)   
Plaquenil should be taken continually, not just during flares. It takes 2-3 months to build to a therapeutic dose - it you only take it during flares it really won't be of much help.
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
DIAGNOSING LUPUS & HW's LUPUS 101
"Life is far too important to be taken seriously." - Oscar Wilde

Melissa D.
Regular Member


Date Joined Aug 2008
Total Posts : 451
   Posted 6/3/2016 1:43 PM (GMT -6)   
Sunshine and fluorescent lighting both do this to me. Many people do not realize it but fluorescent lighting actually emits UV rays and can make a person who is sensitive to the sun feel bad.

Make sunscreen a part of your daily routine. RIT also makes a sunscreen that you can wash your regular clothing in to make them UV protective, they sell it on Amazon.
Married the love of my life, mother of 2 beautiful adult children, 1 amazing daughter in law, and 1 grandson who is truly a gift from God! lupus SLE 1996, sjorgrens, raynauds. My worst nightmare was imagined when my son was diagnosed with RA and lupus NPSLE at 19. I try to live life as though everyday is a blessing, otherwise it would be hard to put one foot in front of the other...hugs
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