Have any of you had to see an oncologist?

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New Member

Date Joined May 2016
Total Posts : 17
   Posted 6/3/2016 10:02 PM (GMT -6)   
I'm waiting (possibly months) to get in to see a rheumatologist. In the meantime, I have been referred to a hematologist/oncologist which is obviously scary. This is due to "concerning blood work results). I have enlarged red blood cells and low red blood cells. I have ulcerative colitis as well, so I assumed the new problems I've been having are due to a new autoimmune issue. I've been extremely fatigued and have a long list of symptoms. Not sure what to think. The nurse from the clinic that referred me to the oncologist was vague and when I called back with more questions I felt like I was irritating her. Too bad, I still asked questions, but really didn't get any answers.

Veteran Member

Date Joined May 2005
Total Posts : 7723
   Posted 6/3/2016 11:03 PM (GMT -6)   
If you have oddities with your blood work such as you've mentioned, it makes perfect sense to see a hematologist as soon as possible to get that sorted out.

Enlarged red blood cells and low red cell counts are not usually things seen by a rheumy.

Try not to waste energy worrying, just make the appointments and let the professionals do their jobs. It'll get figured out!
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
"Life is far too important to be taken seriously." - Oscar Wilde

Elite Member

Date Joined Jul 2009
Total Posts : 14475
   Posted 6/3/2016 11:34 PM (GMT -6)   
My mother sees a hematologist for anemia and a type of lukemia that's not really cancer but is simular.

Try not to worry.

The large red blood cells just mean they can't carry oxygen as well and try to grow bigger to carry it. I have that. I just get tired easier than others.
Lupus, RA, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Depression, Allergies, diabetes, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

Melissa D.
Regular Member

Date Joined Aug 2008
Total Posts : 451
   Posted 6/5/2016 9:04 AM (GMT -6)   
Worry and stress are one of the worse things for a person with any illness, especially possible autoimmune like lupus, as your subcontious actually makes you sicker as odd as that seems. I know it's hard, but speaking from experience (and it's taking me many, many years) you have to go with what the experts are recommending if it sounds reasonable and wait for the results.

I would agree that a hemotologist sounds like the correct person to see if you are having issues regarding blood cells. If you were seeing a rheumatologist he or she would refer you to one anyway to have that checked out as that is not their specialty.

I only wish our Rheumy's were a one stop shop, but unfortunately that's not the case, try as they might they do send us on when things are out of their realm of expertise.

I hope you can get an appt soon so you can find the answers/solutions needed to get on track to feeling better.

Married the love of my life, mother of 2 beautiful adult children, 1 amazing daughter in law, and 1 grandson who is truly a gift from God! lupus SLE 1996, sjorgrens, raynauds. My worst nightmare was imagined when my son was diagnosed with RA and lupus NPSLE at 19. I try to live life as though everyday is a blessing, otherwise it would be hard to put one foot in front of the other...hugs

Veteran Member

Date Joined Apr 2006
Total Posts : 1344
   Posted 6/9/2016 11:45 AM (GMT -6)   
I see a hematologist due to low platelets caused by lupus. Currently the count is very low and lupus will be treated again after years off controlling meds. Most likely I will take steroids again dexamethasone and then prednisone but also possible I will do IVIG for a longer lasting result.

12 years ago I was referred to a hematologist due to low platelets and mild anemia although I had never been sick. He was the one who figured out I had lupus before any clinical symptoms so the current situation is a rerun.

MCTD (SLE Lupus, polymyositis, scleroderma). Diagnosed 2005. Kidney, liver, GI tract, dysphagia, raynauds, barretts esophagus, quadriplegic in 2005. Recovered and now active in downhill skiing, golf, hiking. Meds: amlodipine, benezapril, omeprazole, potassium, folic acid, vitamins, maxide.

Remain Optimistic and you can overcome.
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