I am taking Medication for?

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BreRosie
Regular Member


Date Joined Jun 2016
Total Posts : 50
   Posted 6/9/2016 6:13 PM (GMT -7)   
Hello! This is my first post here and I'm hoping for some advice and just the comfort of not being alone .I've been dealing with a host of symptoms for 2 years now and two weeks ago saw a rheumatologist. He put me on hydroxychlor 200mg? I see him again in 4 weeks to go over blood test. That's all I was told. Almost 12 years ago when I was prego with my daughter we discovered that she had 3rd degree heart blocked (she's fine now , has a pacemaker and is awesome!) and that I carry ssa and ssb antibodies which caused the heart block. I was told I should see a rheumatologist after she was born. I did not. Up until two years ago I felt fine, maybe a little more tired? But nothing out of the ordinary. Now I get a rash on my hands and legs when in the sun , am almost always exhausted and have horrible headaches and body aches. I plan to ask the doc a lot of questions when I go and really wish I would have when I went. I was just in shock that a doctor finally wasn't looking at me like I was crazy. So anybody else here carry SSA and SSB antibodies? Do you have Sjogrens Lupus or both? Is hydroxychlor for either of those? Any clue as to why I'm on this med.? Thanks in advance for any help/input!

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7549
   Posted 6/9/2016 6:37 PM (GMT -7)   
Do you mean Hydroxychloroquine? The common brand name in the US is Plaquenil.

Plaquenil is used to treat symptoms of rheumatoid arthritis and discoid or systemic lupus erythematosus, specifically to reduce inflammation. It is a very common first medication when Lupus and other anti-inflammatory diseases are suspected. (Yes, that includes Sjogren's.)

Two things to note with this medication -
1) It takes 2-3 months to build up in your system, so don't expect immediate results.
2) There is a rare side effect on the eyes, you need to have a baseline eye exam by an ophthalmologist (not an optometrist!) soon, and a follow up exam at least once a year as long as you take it.

Check our first post, Lupus 101 for a list of questions most people will want to ask the rheumy. GO ahead an write down your questions - make 2 copies of the list, hand one to the Dr so s/he can follow along as you read off your copy of the list. Take extra paper & a pencil so you can take notes, too!
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
DIAGNOSING LUPUS & HW's LUPUS 101
"Life is far too important to be taken seriously." - Oscar Wilde

BreRosie
Regular Member


Date Joined Jun 2016
Total Posts : 50
   Posted 6/9/2016 6:52 PM (GMT -7)   
Lol Yes I mean hydroxychloroquine. Sorry I read off my script and I guess it cuts off at the end. I had an eye exam a few months ago and I had it sent to the doctor. Thanks though,
I'll check out the 101.

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7549
   Posted 6/9/2016 7:09 PM (GMT -7)   
The eye exam is a special field of view exam that they don't always do unless they have a reason to -- ophthalmologists will always do it if you make a point of telling them you take hydroxychloroquine.
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