I have returned to work after being on LTD for four years. I had no choice, my husband's office closed down and either I went back to work or we lost everything. Now that I am working and not home managing symptoms it has been painfully clear that each and every flare is exactly the same, from start to finish, but the duration varies. Since becoming employed, I've had a total of six, and as of this date, I've used all sick time and vacation for the entire year. If I have another lengthy flare, It's very probable that I will lose my job.
This is from my most recent flare- I am currently home because of it as I type this.
May 1st- July 10th. Felt great, rode bike an hour four days a week. Never missed a day due to illness
July 11th- Woke with sore throat and mouth sores, slight fatigue. Eye flare - dry eyes, redness, pain, and blurry vision. Feel like I am getting a sinus infection, or might have strep.
July 12- fatigue much worse, pain in kidneys, frequent urination, feel as if I have bladder infection, breast and rib cage pain.
2:30 a.m. woke to extreme nausea and headache. joint pain and muscle aches pain at least a 8. Stomach cramping and diarrea. Sleep is not possible due to stomach issues and pain
July 13th- Pain continues, stomach issues continue. nausea subsides. Headache is a 10. veins in feet start to hurt, shoes hurt, dressing is not doable because fatigue is so severe. Walking to kitchen from bedroom is difficult. Have hot and cold spells like I am running a fever.
July 14th headache is intermittent, pain in joints and muscles continues unabated, probably about a seven now. stomach woes resolved. Develop a limp due to muscle spasms. Fatigue comes and goes, is better if I just sit. If I try to do anything it wears me out fast.
That's it so far. The symptoms can stick around for days, weeks or sometimes as long as a month. It varies. I am on Savella, turmeric for arthritic pain. I also have cognitive issues that I've been given a very expensive medicine for. I cannot afford it, so I do not take it.
That's it. Input is appreciated. I have had one positive Ana done by a neurologist years ago at a research hospital. Two others done at labcorp were neg. My vitamin d was low, but now normal. I am not anemic and yes, I have failed the inflammatory/autoimmune test, obviously b/c of arthritis.
I guess at this point, I need to be honest and just stay home and manage my disease.. if I can get SSDi that is.