menstural cycles and flares?

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BreRosie
Regular Member


Date Joined Jun 2016
Total Posts : 50
   Posted 7/22/2016 6:51 AM (GMT -7)   
Does anyone else seem to have more symptoms with their menstrual cycle? I had a 2 weeks last month right before my period and after where I felt worse than I have ever felt . When I look at my symptoms in the past its always worse around my period. I saw my doc a few days later and he upped my dosage of hydroxychloroquin from 200mg to 400mg. Now 2 weeks later as my period gets closer my muscles are hurting again and my head and I feel so tired. He gave me a script for prednisone if it gets bad again. Is this going to happen everytime I get my period? On a side note, all my labs came back and I have been officailly diagnosed with lupus. I guess my ana was pretty high. I'm happy to finally have a diagnosis but sad it's not something that's just going to go away.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 7/22/2016 10:12 AM (GMT -7)   
When I near my period I feel like I've been run over by a mac truck.

So much affect us.
Joy
Lupus, RA, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Depression, Allergies, diabetes, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

cilly
Veteran Member


Date Joined Aug 2014
Total Posts : 1361
   Posted 7/24/2016 1:05 AM (GMT -7)   
Flares before or at time of periods ,yes there seems connection.

Hormones causes stuff to skin.

My skin is always flaring though........strange.

Very painful today ,was in 10 min strong sun and it is this bad,can't believe.
Cilly

Melissa D.
Regular Member


Date Joined Aug 2008
Total Posts : 427
   Posted 7/24/2016 8:06 PM (GMT -7)   
BreRosie,

I'm sorry first of all that you have been given a positive diagnosis. I think all of us here with Lupus can relate to the mixed feelings you are having of being glad you have a diagnosis, but sad that it is something so unpredictable and of course with no cure. I would say if your lupus is active than yes, you will see typically notice flares near or during your menstrual cycle. I personally experienced that the more active my disease the worse the symptoms each month. I had a partial hysterectomy 3 years ago, in the beginning I could still tell when I would have had my period and had slight flares, as time went on that has faded as far are "that time of the month". My disease is still active, but it's different and not as exhausting maybe is the best way to explain it when the flares hit.

My daughter (28) is in the process of being tested and she goes through the same exact issues each month.

Hope they can get your disease under control and have you feeling better soon.

Hugs,
Melissa

BreRosie
Regular Member


Date Joined Jun 2016
Total Posts : 50
   Posted 7/28/2016 4:13 AM (GMT -7)   
Thank you for the respnoses and I'm sorry that all of you are going through this as well. I worry about the impact that this is going to have on my family. My daughter is 11 nearly 12 and she was born with a heart defect caused by antibodies that I carry. SSA and SSB.The doctors found the heart defect and then tested me for the anibodies. She has a pacemaker and heart wise she is doing great. She developed kidney disease at the age of two and that has been an on going issue. She is the most amazing, strong, person I know. I am so worried about being sick and not being there for her or my other two children , or to much stress for my husband having to take on so much with a chronically ill child and now wife. He has been amazing and is a wonderful husband and father but I still worry. I guess simply put I feel overwhelmed. Wow, I guess I needed to vent. :0)

Babybluegurl87
New Member


Date Joined Sep 2015
Total Posts : 10
   Posted 8/9/2016 10:58 AM (GMT -7)   
I have not been diagnosed with Lupus but with UCTD and erythromelalgia for right now. I was just about to post a question similar to this, and yes, I believe there is a correlation between your menstrual cycle and these flares.

I'm due in a few days, and today I feel like my entire body has been 'turned on.' I feel like I'm overheating, my joints are painful to the touch, my clothes hurt today... if that even makes sense.

I hear you on the pain part. I also take hydroxychloroquine (2x's a day) are you able to take a small dose of Advil when the pain gets really bad? Also, heating pads, hot showers/baths and herbal tea might help too.

I hope you feel better soon.

cilly
Veteran Member


Date Joined Aug 2014
Total Posts : 1361
   Posted 9/8/2016 10:19 PM (GMT -7)   
Hot showers are deadly for lupies.
I. Miss them.

It's so npedictable disease to live with.
Cilly

jardin11
New Member


Date Joined Sep 2016
Total Posts : 2
   Posted 9/11/2016 5:03 PM (GMT -7)   
I do think it gets worse around that time of the month, especially during the week of. Any suggestions on ways to prevent bad flares?

CountryLupie
New Member


Date Joined Sep 2016
Total Posts : 3
   Posted 9/20/2016 7:15 AM (GMT -7)   
I'm new here but I just wanted to say that I've been diagnosed with Lupus. And yes I have problems at that time of the month. I honestly thought that it was just me.
Also, I wanted to ask Cilly a question, you said hot showers are deadly for lupies, is there anything else I need to watch out for?? I'm still new to this, just was diagnosed over a year ago and trying to find a good Rheumy. I hope it's alright for me to ask these questions here.

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7549
   Posted 9/20/2016 8:58 AM (GMT -7)   
Welcome, Country Lupie,

Of course it's alright to ask questions!

I've had Lupus for over 16 years, and I take a very hot shower at least once a day. I'm not sure why Cilly finds them a problem, but no one else has ever made that particular observation. I find a hot shower really helps with the muscle and joint stiffness I get from Lupus.

Lupies do often have issues from sun and fluorescent lights - we tend to be sun sensitive and unfortunately some of our meds make us even more sun sensitive!

Cheers,
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2000
DIAGNOSING LUPUS & HW's LUPUS 101
"Life is far too important to be taken seriously." - Oscar Wilde
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