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Regular Member

Date Joined Apr 2016
Total Posts : 383
   Posted 7/26/2016 1:10 PM (GMT -6)   
does systemic vasculitis make your body feel hot it is on fire

I also have lyme and confections..but I have things going on that others don't seem to have...the rhematologists says all I have is reynauds although I have levida reticularis and broken blood vessels all over my body.....

Forum Moderator

Date Joined May 2005
Total Posts : 7720
   Posted 7/26/2016 1:55 PM (GMT -6)   
I have heard a member report that Vasculitis made her feel hot, like you are describing. I don't think she ever found a remedy for it, though. Sorry.
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
"Life is far too important to be taken seriously." - Oscar Wilde

Regular Member

Date Joined Apr 2016
Total Posts : 383
   Posted 7/26/2016 2:01 PM (GMT -6)   
what I was afraid of

Forum Moderator

Date Joined Jun 2006
Total Posts : 1650
   Posted 7/26/2016 8:56 PM (GMT -6)   
Hi Carla. I don't have vasculitis, but I sweat terribly. I sweat from the slightest activities and as you'd expect I can't wait for summer to be over. Things that help me: get a soft gel freezer pack, wrap a towel around it and place it under your pillow. Also consider buying cooling pads made to sleep on and a cooling pillow. Amazon has a variety. I recently bought a cooling towel that I use outside. I also keep a clean wash cloth in my purse and don't hesitate to use it in public to dry my dripping face, neck, hair.

Two of my docs say this reaction to heat is a result of my meds. Oh, I also don't shower right before I go out. I get relief from the heat during the shower but begin sweating as soon as I am done. I hope this helps a little. Love, Butterflake
SLE '05, Sjogren's, Fibro, Raynaud's, major depressive disorder, CVID (Common Variable Immunodeficiency), Hypertension, Osteoporosis, CNS problems, GERD, angina, 1st stage kidney disease. Many meds: better living through chemistry

Regular Member

Date Joined Apr 2016
Total Posts : 383
   Posted 7/27/2016 10:00 AM (GMT -6)   
butter flake have you ever been tested for lyme..I used to sweat like that for years gained a lot of weight couldn't lose it ..of course now since a root canal andn an abscess and these vascular symptoms had some gut issues and lost over a 100 lbls and now don't sweat at all..have low bp and low body temp

Veteran Member

Date Joined Aug 2014
Total Posts : 1491
   Posted 7/27/2016 10:57 PM (GMT -6)   
I am always,I guess we are all made different.I tend to hate summer for that reason.I tend to sweat in nervous situations or when I have high physical activity.Thats how I am made .
I wanna try cooling memory foam pillow and mattress topper .

I have lupus and was never checked for Lyme.

I guess I have Reynolds as I have seen blue tips of my toes and fingers.
I stay away from frozen section in grocery stores,I feel cold easily.
I am recently starting to see high Blood pressure.
I don't take hot showers or steam due to that reason,I take cool showers.
I loved hot showers before but had to give it up since lupus was diagnosed.
Also my body reacts to any kinda light bulbs also.
I just observe my body a lot how it reacts.

I can lose weight if I want to but being hypothyroid makes it harder.

Regular Member

Date Joined Apr 2016
Total Posts : 383
   Posted 7/28/2016 7:43 AM (GMT -6)   
I am not just body feels like some one has set it on fire now...not hot like the temperature is too warm but literally like someone set me on when you burn yourself..just all over
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