Discoid Lupus and scalp lesions

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Ms. Dee-Dee
New Member


Date Joined Aug 2016
Total Posts : 4
   Posted 8/11/2016 3:26 PM (GMT -6)   
I was diagnosed with discoid lupus about 3 years ago. The Iesions on my scalp are VERY red and painful. I have had dramatic hair loss. What can I do?

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 8/11/2016 7:10 PM (GMT -6)   
I have psoriasis on my scalp and have sores. I use Denerex shampoo to ease the sores have almost vanished. Have you tried a medicated shampoo?
Joy
Lupus, RA, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Depression, Allergies, diabetes, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

Ms. Dee-Dee
New Member


Date Joined Aug 2016
Total Posts : 4
   Posted 8/11/2016 9:12 PM (GMT -6)   
No I haven't. The spots where the sores are, I'm completely bald. Scalp painful to touch. Very red and raw looking. I'm gonna try the Denerex Shampoo.

Lynnwood
Veteran Member


Date Joined May 2005
Total Posts : 7723
   Posted 8/11/2016 11:47 PM (GMT -6)   
Are you taking any medications to control your disease? I believe it has to be treated systemically, not just topically.
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
DIAGNOSING LUPUS & HW's LUPUS 101
"Life is far too important to be taken seriously." - Oscar Wilde

Ms. Dee-Dee
New Member


Date Joined Aug 2016
Total Posts : 4
   Posted 8/12/2016 1:48 AM (GMT -6)   
I was taking plaquenil until I got pregnant. I delivered in May 2015 and haven't restarted the medications. It's time for a followup appointment. I can feel the changes.

Tinkerbee
Regular Member


Date Joined Feb 2013
Total Posts : 59
   Posted 8/12/2016 4:21 AM (GMT -6)   
I have DLE as well. Clobetesol will help. It is a very potent topical steroid. It cleared my scalp lesions. The only way to keep it at bay is sun avoidance. Wear a wide brimmed hat at all times when outside.

Ms. Dee-Dee
New Member


Date Joined Aug 2016
Total Posts : 4
   Posted 8/12/2016 10:39 AM (GMT -6)   
Do I need a Rx for Clobetesol?

Tinkerbee
Regular Member


Date Joined Feb 2013
Total Posts : 59
   Posted 8/13/2016 4:37 AM (GMT -6)   
Yes, you do. :)

cilly
Veteran Member


Date Joined Aug 2014
Total Posts : 1526
   Posted 9/9/2016 12:21 AM (GMT -6)   
That's a good cream.
Denorex helps too.its good shampoo.
Cilly

sdgirl
New Member


Date Joined Nov 2016
Total Posts : 2
   Posted 11/10/2016 6:29 PM (GMT -6)   
Hi everyone!

I'm new to this forum, but I've had systemic lupus since 1988. I've also been experiencing hair loss and it's very traumatic. I have sores on my scalp and just recently the dr. gave me a liquid clobetesol to put on my scalp. It has really helped! I've tried the Nioxin shampoos and conditioners, and I take biotin everyday but my hair continues to fall out... I will try folic acid. I think I also have discoid lupus because I have so many things happening to my skin, but the dr. still says I have systemic lupus. Does anyone know if you can have both?
thank you.
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