Learning Im not really Crazy

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

BrokenDishwasher
New Member


Date Joined Sep 2016
Total Posts : 5
   Posted 9/5/2016 8:30 PM (GMT -6)   
I've recently learned I have SLE. Ok swollen joints and pain, that's what I thought this was. No I don't want your meds that cause the same problems I already have from time to time. That's how I felt. Oh there is so much more to this .Forgive me, while I vent. I have sat and thought back to when I believe this started. I had surgery in 2007 and afterwards I felt different. I even called the doctors nurse and asked," what happened in surgery" because I don't feel the same. Even thought I didn't look the same because I had breast implants put in. Something about the way I felt, sad, confused, crying for no reason. Yeah sure I had pain resulting from 2 back and neck surgeries plus many broken bones in the past. This was different. Was I losing my mind? So the next step was hormone replacement therapy. Seemed to help some but I just wasn't right. After 9yrs I find out this is Lupus. Whats hard is from day to day its a mystery how I'm going to feel. I hate so much of the thought of taking the medication. I'm on Plaquenil 200mg once a day. I've take it for a little over 2 wks now and I am feeling so depressed. I said something to the doc and I was told oh its not even in your system yet. Go see a therapist. I for sure don't want to take their drug either. I'm I doomed to mental health drugs now? Or does the Plaquenil help depression? Any thought would be greatly appreciated. I'm trying to learn from peps whom have been there. Oh might need to throw in, I cant take steroids, NSAIDS, nor asp That's why such a low dose and that drug. Thanks

BrokenDishwasher
New Member


Date Joined Sep 2016
Total Posts : 5
   Posted 9/5/2016 10:28 PM (GMT -6)   
I have learned YES this drug has the side effects that makes you cry for no reason, generally feel bad and yes you can have the side effects without taking it for 3 months. I spoke with someone whom was diagnosed with bipolar due to the side effects. After stopping they are better. I understand not all have the same effects. With that said I was very pleased to know I wasn't the only one that felt funky taking it. And with further digging I find another medication I'm taking has the same side effects. I am by no means telling anyone to stop their medications. I gave it a try and found side effects worse than the help. I wish you all the best of health.

Melissa D.
Regular Member


Date Joined Aug 2008
Total Posts : 448
   Posted 9/6/2016 8:12 AM (GMT -6)   
I honestly do not feel that what you are experiencing is from plaquenil itself. I urge you to read the side effects of the medicine, this medication has been around a long time, there is nothing that states it causes depression and definitely not bipolar. Perhaps what you are experiencing is simply coming to terms that you have lupus, I'm not sure. If you're feeling off or depressed this really should be discussed with your doctor.

www.ncbi.nlm.nih.gov/pubmedhealth/PMHT0010621/?report=details#side_effects

[Edited to make link active.]

Post Edited By Moderator (Lynnwood) : 9/6/2016 8:24:33 AM (GMT-6)


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 9/6/2016 8:30 AM (GMT -6)   
Welcome, Broken Dishwasher, to Healing Well!

I have to agree with Melissa, it would be highly unusual to experience these side effects from Plaquenil... very, very unlikely. It is however, very possible that you are feeling sadness/depression from the diagnosis and from starting treatment for Lupus. It happens on an unconscious level, so you may not even be aware of what is happening.

You mention you are taking "another drug" with these same side effects. What medication is that? Even if you have been taking whatever-this-is for a while, it is possible that adding Plaquenil has accentuated side effects.

Hang in there,
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
DIAGNOSING LUPUS & HW's LUPUS 101
"Life is far too important to be taken seriously." - Oscar Wilde

BrokenDishwasher
New Member


Date Joined Sep 2016
Total Posts : 5
   Posted 9/6/2016 9:32 AM (GMT -6)   
Thank you for your input, Melissa and Lynnwood. I am waiting for a call from the Rheumatologist to see what she thinks. The other drug is Valtrex, to suppress the virus. I feel like I have the flu all the time. So maybe I just need to come to grips with the idea of lupus. It seemed like a Easy fix :) Thanks again for your thoughts :)

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 9/6/2016 12:28 PM (GMT -6)   
You say, "Valtrex, to suppress the virus" - Lupus isn't a virus, so not sure what this means. You may need to make a list of questions for your rheumy.

I've used Valtrex on and off for years to control herpes (oral) outbreaks. I'm not aware of another use other than herpes (both kinds), but there certainly could be one. I've never heard of it contributing to depression, either - but it's not used nearly as often as Plaquenil, so reports here of it's side effects would be sparse even if they did occur.
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
DIAGNOSING LUPUS & HW's LUPUS 101
"Life is far too important to be taken seriously." - Oscar Wilde

BrokenDishwasher
New Member


Date Joined Sep 2016
Total Posts : 5
   Posted 9/6/2016 12:56 PM (GMT -6)   
Sorry if you misunderstood but I didn't say I took it for lupus. I said the virus. Since I have the herpes virus in my blood and never had a break out . It's to keep it at bay and not have one. Are you a doctor?

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 9/6/2016 1:23 PM (GMT -6)   
No, I'm not a Dr, no one here is.

I was asking what you meant. I see now that you meant you take it for the herpes virus.
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
DIAGNOSING LUPUS & HW's LUPUS 101
"Life is far too important to be taken seriously." - Oscar Wilde
New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, June 19, 2018 4:58 AM (GMT -6)
There are a total of 2,973,237 posts in 326,185 threads.
View Active Threads


Who's Online
This forum has 160972 registered members. Please welcome our newest member, lho51136.
337 Guest(s), 1 Registered Member(s) are currently online.  Details
AnnaB114