Tetracyclines, the best answer?

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eevilgeniuss
New Member


Date Joined Sep 2016
Total Posts : 7
   Posted 9/29/2016 7:34 PM (GMT -7)   
Hi Everybody

I wanted to find out if there is anything behind treating Lupus with Tetracyclines on a longer 3-12 months, like they do at the hospital mexico.

They have many testimonials, and seem very open about their treatment. e.g.
https://www.youtube.com/watch?v=zP1mQf2L_Yw

Has anyone had any experience with longer course of Tetracycline or had his blood checked for pathogens under the microscope? It looks very honest. And the theory makes sense, I am searching for options as I am newly diagnosed.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 9/29/2016 9:58 PM (GMT -7)   
In my opinion I think it's bogus.
Lupus is an overload of immunity. If you take something that boosts your immunity like an antibiotic and your not sick with a virus or infection, you risk ramping up the immunity in your body causing you to have worse lupus attacks.
Joy
Lupus, RA, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Depression, Allergies, diabetes, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

eevilgeniuss
New Member


Date Joined Sep 2016
Total Posts : 7
   Posted 9/29/2016 10:08 PM (GMT -7)   
Hi Joy

I am a scientist, so I am having a hard time with your answer. Mainly the fact that you say antibiotic boost the immune system and that lupus is an overload of immunity.

If you said an overactive immune system that would make sense. Why is it overactive? Might be bacteria in the system creating havoc. Any antigen can create that, whether heavy metals, bacteria, biotoxins, food proteins... So the idea of antibiotics makes sense if there were to be a systemic bacterial infection.

What I think is that this is not bogus, they dont make money out of generic cheap antibiotics you re buying at the pharmacy, however people as you can see in the testimonials will get better to 60-100% however what I ask myself is:
- is the recovery long lasting given the lknown ong term consequences of AB use

Post Edited (eevilgeniuss) : 9/29/2016 11:11:19 PM (GMT-6)


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7550
   Posted 9/30/2016 5:42 AM (GMT -7)   
Lupus is caused by a problem with the immune system, NOT by pathogens or other antigens in the blood. It is never treated by Tetracycline. Perhaps you are thinking of Lyme disease. I have had Lupus for over 15 years, active in the Lupus community most of that time, and have met hundreds of people with Lupus. Never have I heard of such a theory.

Joy meant overactive immune system, she accidentally used the word overload.

If you don't want our opinions, please don't tempt us with questions! And by the way, a Spanish-speaking video isn't of much interest to a English-speaking online community. Here is a link to some people discussing this kind of treatment. /www.dailystrength.org/group/lupus/discussion/antibiotic-therapy-for-lupus
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2000
DIAGNOSING LUPUS & HW's LUPUS 101
"Life is far too important to be taken seriously." - Oscar Wilde

Post Edited (Lynnwood) : 9/30/2016 6:46:16 AM (GMT-6)


couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 9/30/2016 2:22 PM (GMT -7)   
Thank, lynnwood. I sometimes use the wrong words.
Joy
Lupus, RA, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Depression, Allergies, diabetes, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

eevilgeniuss
New Member


Date Joined Sep 2016
Total Posts : 7
   Posted 9/30/2016 2:38 PM (GMT -7)   
You are being unprofessional. I obviously want the opinion of people, otherwise I would not be posting.

Thanks for the link, so Dr Brown mentioned in the discussion was the one peoposing this theory, its been used for RA, and now by some practitioners for Lupus.

As you see in that discussion some people report success as they do in the testimonials of hospital mexico.

What I am looking for are first hand experiences to figure out what the success variables look like.

Anyone?

eevilgeniuss
New Member


Date Joined Sep 2016
Total Posts : 7
   Posted 9/30/2016 2:45 PM (GMT -7)   
And I dont want to be offensive, I want to contribute to everyones knowledge. For instance when you say "Lupus is caused by a malfunction of the immune system".

My thoughts are:
- is this an observation or the cause, nowhere it has been proven that this is a cause, it not just happens like this. There is a cause if the leaves move on the tree, either the rain or wind... You see what I mean.
- we can say we see the immune system not functioning correctly, that yes. Now 80% of the immune system is in the gut, maybe and this i is theory, there is an infection in the gut?! Success with antibiotic would support that theory, although obviously not proving it.

I am just helping, we need to stay scientific.

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7550
   Posted 9/30/2016 6:24 PM (GMT -7)   
Please note - there are NO professionals here. This is just a group of people who have Lupus or are interested in Lupus, plus some volunteer moderators to keep things civil.
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2000
DIAGNOSING LUPUS & HW's LUPUS 101
"Life is far too important to be taken seriously." - Oscar Wilde

Melissa D.
Regular Member


Date Joined Aug 2008
Total Posts : 430
   Posted 10/2/2016 2:32 PM (GMT -7)   
I am definitely not trying to be rude, I can only speak for myself, I have lived with a diagnosis of lupus for 20+ years; everything I have EVER been told, read or studied is that lupus is caused by ones immune system going haywire and/or malfunctioning and attacking healthy cells and tissue in the body. I have literally gone through all viable treatment options available for an SLE patient at this point in time in the United States, Tetracycline has never been offered as an option for me. Perhaps it is used outside the US, although I'm not sure why it would be used. I too have a back ground in science and my son is a research scientist specializing in autoimmune disease.

eevilgeniuss
New Member


Date Joined Sep 2016
Total Posts : 7
   Posted 10/2/2016 2:53 PM (GMT -7)   
I understand, however put yourslef in my shoes, I have been diagnosed for 1 month and came across this approach several times, especially when I was researching R.A. I mean last week a paper was published suggesting 2 specific bacteria pathogens are involved in chron's, many papers have determined how certain species are involved in R. A. There is a foundation in the US, the road back foundation, has been using antibiotic protocols for R. A. This was developed and pioneered by Dr. Brown. It is been used also for lupus. This is not something new, my suspicion and theory is that as per other autoimmune diseases, with Lupus we develop an allergy against specific strains of bacteria that has crossed the gut epithelium which via molecular mimickery triggers the autoimmunity. Removing or reducing that strain would help improve symptoms. Makes sense on paper...

Post Edited (eevilgeniuss) : 10/2/2016 3:56:20 PM (GMT-6)


eevilgeniuss
New Member


Date Joined Sep 2016
Total Posts : 7
   Posted 10/2/2016 3:00 PM (GMT -7)   
I agree with you, it does not seem to be a popular treatment :)

You see I do not accept your belief that the immune system just goes haywire... Or that people just develop cancers or whatever illness.

There are reasons why things happen. Otherwise you are not a scientist.

Melissa D.
Regular Member


Date Joined Aug 2008
Total Posts : 430
   Posted 10/3/2016 12:15 PM (GMT -7)   
Believe what you wish, but that's exactly what happens, there is a break down in the immune system, it goes into over drive because it believes there is an infection where there is none and begins attacking healthy cells. If there was an infection in the blood it could not target individual organs or cells specifically as is done in Lupus.

A word of advice, if you are looking for advice or help from others be open, flexible and realize that others here with lupus are only trying to help to the best of their ability. Trust me, we all want to help where we can. None of us on this board are professionals, we are simply individuals who are unfortunate enough to know what it's like to live with Lupus and are willing to share our stories and experiences!
Married the love of my life, mother of 2 beautiful adult children, 1 amazing daughter in law, and 1 grandson who is truly a gift from God! lupus SLE 1996, sjorgrens, raynauds. My worst nightmare was imagined when my son was diagnosed with RA and lupus NPSLE at 19. I try to live life as though everyday is a blessing, otherwise it would be hard to put one foot in front of the other...hugs

eevilgeniuss
New Member


Date Joined Sep 2016
Total Posts : 7
   Posted 10/3/2016 2:06 PM (GMT -7)   
Ok, I understand, thank you.

Anyone has any experience with a tetracycline treatment?
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