MCTD is an overlap syndrome and patients can have symptoms of SLE Lupus, scleroderma, polymyositis or dermatomyositis and sometimes other autoimmune symptoms. It presents differently in each patient and can be very mild or even life threatening. It is nothing to mess with by ignoring doctors orders. Eating healthy and taking supplements is fine for general health but has nothing to do with treating MCTD. If you are already exhibiting symptoms you should be on some form of treatment. Standard protocols are prednisone and something else like methotrexate or azathioprine and there are others. Goal is to control symptoms and taper down or off prednisone which is not generally tolerated well for long term treatment (usually meaning years). Early diagnosis and aggressive treatment works best with all AI diseases.
I have mctd for the past 11 years and presented with severe and complicated lupus symptoms and then polymyositis kicked in after a couple of months. After losing 40 lbs of muscle in a week (not a typo) even though on high doses of steroids I was saved with a treatment of IVIG. I was quadriplegic with a feeding tube with little to look forward to in life. After a long period of rehab I have returned to an active life of downhill skiing, golf, hiking and other activities. My disease has been well controlled although lupus popped up after 8 years of remission and I have been dealing with that the past 2 years.
Few cases are as extreme as mine was but it illustrates just how powerful the disease can be. If you want more details the Myositis Association made a video of my patient story and it can be viewed on YouTube by search my name.
Most patients tolerate methotrexate well and if you don't there are other treatment options. All treatments for AI diseases have a long list of side effects, most of which patients don't get. And you might tolerate the treatment well. Hope you make the right decision and get your mctd under control.
MCTD (SLE Lupus, polymyositis, scleroderma). Diagnosed 2005. Kidney, liver, GI tract, dysphagia, raynauds, barretts esophagus, quadriplegic in 2005. Recovered and now active in downhill skiing, golf, hiking. Meds: amlodipine, benezapril, omeprazole, potassium, folic acid, vitamins, maxide.
Remain Optimistic and you can overcome.