Having SLE for over 20 years and my disease unfortunately becoming more active as time goes on, I have learned to keep a close eye on my labs. My last labs a few weeks ago have left me quite concerned because there are several things that are abnormal, such as:
RNP(sm) 114 (normal is 0.00 - 83)
SSA(ro) 231 (normal is 0.00 -91)
C4 10 (normal 16 - 47)
There are other labs that are off such as my lymphs, neutrophils, and my SGOT and SGPT were slightly raised as well as my protein, these have gone up and down that is not unusual. The RNP and SSA, however are just recently increasing, this is the worse I can recall these counts being. I sent a message to my doctor's office and his nurse called me back and said "the doctor said this means your disease is increasingly more active." Okay?! But active with what? When I do research I am concerned that it could be Liver or Kidney disease!
I have been very blessed that I have not experienced kidney disease, I have had a few issues with my liver over the years, but it has been able to be controlled and there has been no activity or suspect of activity in recent years. And when I did deal with that my liver counts were over 300.
I don't see my doctor again until December 21st, I have tried sending another message to see if I could get a more clarified answer and to see if I need to have labs drawn again maybe 6 -8 weeks from the last draw to see where they stand.
Do y'all think I am over reacting or over thinking things? I have also read that it is not typical for a person who has had SLE this long who has not developed kidney disease to develop it. Your experience, thoughts?
Thanks in advance;
Post Edited (Melissa D.) : 11/1/2016 4:12:59 AM (GMT-6)