Hi VLou*. As far as I know, hydroxychloroquin 200mg taken twice a day is the maximum dose used to treat lupus. It worked a few months for me too, but then my rheumy had to add additional meds. I've remained on the 400mg for over ten years with various other meds added and discontinued. Regardless of the other meds I can still tell if I've forgotten to take my hydroxychloroquin for a few days. It's subtle, but I can tell something's not right. And I take (have taken) lots of other meds while continuing hydroxychloroquin, including the two medication infusions I get IV every month.
I agree with Lynnwood completely that your Rheumy is the only doc who should be treating your lupus and that lupus has it's own ebb and flow (even flares) even while on meds.
It's November today (yea! hopefully cooler weather) and that means December is just a few weeks away. Most of us know first hand what it's like to wait for an appointment when we feel like crap, but sometimes that's our only option. In the mean time, some other things you can do over the counter that I like to provide some relief are: as much rest as you can get, Arthritis Tylenol, Excedrine, and Epsom salts baths (I like Dr. Teals lavender). Feel free ask questions, vent, and please let us know how you're feeling. Love, Butterflake
SLE '05, Sjogren's, Fibro, Raynaud's, major depressive disorder, CVID (Common Variable Immunodeficiency), Hypertension, Osteoporosis, CNS problems, GERD, angina, 1st stage kidney disease. Many meds: better living through chemistry