New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

New Member

Date Joined Dec 2016
Total Posts : 2
   Posted 12/16/2016 12:44 AM (GMT -6)   
I will be starting a new drug next week .....acthar? Has anyone taken these home injections? Any success? Side effects? Complaints? Praises?

Veteran Member

Date Joined Jun 2006
Total Posts : 1650
   Posted 12/21/2016 1:01 AM (GMT -6)   
Welcome to our forum micflores4. I've never taken ACTH, but I looked it up and found that it stimulates the release of cortisol and another steroid. These are supposed to reduce inflammation. I thought it was interesting that the medication ACTHAR is derived from highly purified pig adrenal glands. Anyway the way I understood it was that ACTHAR is basically the ACTH that your body produces, but it is supposed to dramatically increase the cortisol production in your body. I'm betting that you already know this and since I've never taken it I'm really no help. I hope someone comes along who has taken it and can help you. I hope your injections go very well
SLE '05, Sjogren's, Fibro, Raynaud's, major depressive disorder, CVID (Common Variable Immunodeficiency), Hypertension, Osteoporosis, CNS problems, GERD, angina, 1st stage kidney disease. Many meds: better living through chemistry

New Member

Date Joined Feb 2014
Total Posts : 8
   Posted 1/5/2017 8:30 AM (GMT -6)   
I just started Acthar for joint pain associated with Crohn's disease. I was not responding well to 40 mg of prednisone so my Rheumatologist started me on it. All I know is that it's extremely expensive. I am taking one 80 mg shot per week. So far so good, but in addition to weaning off the prednisone I have a huge moon face and swollen neck. Not sure if Acthar is contributing to this but I've never had this much fluid retention on prednisone alone. I think it's helping with the joint pain, as I'm weaning off pred and feeling pretty good. Good luck.

Veteran Member

Date Joined Apr 2006
Total Posts : 1344
   Posted 1/7/2017 11:40 PM (GMT -6)   
Acthar makes your body produce more cortisol rather than taking prednisone which is the synthetic. It has been around but not widely used for 50 years. It does seem to work for some but not others like all treatments. It was very cheap until 2 different companies bought the rights to make it and raised the price a few years ago.
MCTD (SLE Lupus, polymyositis, scleroderma). Diagnosed 2005. Kidney, liver, GI tract, dysphagia, raynauds, barretts esophagus, quadriplegic in 2005. Recovered and now active in downhill skiing, golf, hiking. Meds: amlodipine, benezapril, omeprazole, potassium, folic acid, vitamins, maxide.

Remain Optimistic and you can overcome.
New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, September 25, 2018 11:43 AM (GMT -6)
There are a total of 3,006,459 posts in 329,341 threads.
View Active Threads

Who's Online
This forum has 161835 registered members. Please welcome our newest member, scattycatty.
323 Guest(s), 19 Registered Member(s) are currently online.  Details
logoslidat, HeartsinPain, mattamx, LorrieL., jberda1, Tredye, Anitas, Admin, Bob in Elkridge, Tudpock18, Jay79, chewbetta, InTheShop, SharonZ, CCinPA, MacroMan, paisan, Kay Tee, Sahale