Posted 12/31/2016 5:17 AM (GMT -8)
Naps. Plenty of naps. Long restful nights. And pacing - very important to pace yourself. And make wise choices.
For instance, use the airport-supplied wheelchair when flying, save your energy for the baby! At exhibits and aquariums, do the same. Energy used walking could better be applied elsewhere. DO NOT be too bashful to do this!!
about 3 years after my diagnosis, when I had no idea if I'd ever get better and every expectation I'd get worse, I went on my dream sailing vacation to the Galapagos. There were 3 site-seeing trips a day, and the middle one I skipped in favor of a nap - even if it was just a restful quiet time with a book. People stayed up late playing cards, I chose an earlier bedtime.
Even now, with a whole-house carpet replacement project -- before Lupus I'd easily get everything back together in a few days. Now I'm purposely taking my time (first time to deep clean some areas in years), discarding, cleaning, and repairing as I go. As long as I can get to my bed, bathroom, and kitchen it's going to be okay. I am fully prepared to take till April to do this. And hopefully because I've mentally prepared, the intermediate mess won't make me depressed like it usually would.