Posted 2/9/2017 12:32 PM (GMT -7)
Today I am 74 years old. When I was 43 I was diagnosed with SLE and treated with plaquanil and went into submission after about two years. It was not a major flare. Thirty-one years later at the age of 74 lupus is active again. Symptomatically I am bothered with very tactile skin, feels like a thousand currents of electricity attacking my skin, clothes hurt, shower spray is intolerable, much fatigue and secondary to SLE am bothered with Shogrun's Syndrom with eyes feeling like sandpaper. This all started when I went into the garden at noon, unprotected by sunscreen or hat. I usually spend 3 to 5 hours a day gardening. I think the ultra-violet rays triggered the flare. Has anyone else experienced something similar? Silly me, I really thought I didn't have lupus; not after 31 years! Currently treated with plaquanil, 20mg. prednisone and sol-medrol injections every two weeks. Condition has been active for about 5 months but only recently been aggressively treated.