I can stop Benlysta!

Hi Everyone. After two years of Benlysta, today my rheumy said I could stop. As you know I've been sick in bed for months. I recently went to my dermatologist for small nodules on my palms/arms and she said it was a virus probably from the Benlysta. After reading my last two lab reports I've been thinking that my lymphocytes (white blood cells) were getting terribly low and that could be making me sick. I can't say my rheumy agreed, but his PA did. She talked with him and he came in and said, " let's stop the Benlysta." Yea!!

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SLE '05, Sjogren's, Fibro, Raynaud's, major depressive disorder, anxiety; CVID (Common Variable Immunodeficiency); IVIG and Benlysta infusions monthly; Hypertension; Osteoarthritis of the spine, right knee, fingers, toes; Bursitis right hip; Osteoporosis, CNS problems, GERD, angina, 1st stage kidney disease. Many meds: better living through chemistry

Thanks Lynnwood! I hope so too. At the very least it's one less infusion! Love Ya!

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SLE '05, Sjogren's, Fibro, Raynaud's, major depressive disorder, anxiety; CVID (Common Variable Immunodeficiency); IVIG infusion monthly; Hypertension; Osteoarthritis of the spine, right knee, fingers, toes; Osteoporosis, CNS problems, GERD, angina, 1st stage kidney disease. Many meds: Better living through chemistry

Hope you feel better soon!

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Hugs;
Melissa
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Lupus SLE 1996, Sjogrens, Raynauds. My worst nightmare was imagined when my son was diagnosed with RA and Lupus NPSLE at 19.

Thank you ladies! I'll have to be patient while it leaves my system and I'm looking forward to better days

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SLE '05, Sjogren's, Fibro, Raynaud's, major depressive disorder, anxiety; CVID (Common Variable Immunodeficiency); IVIG infusion monthly; Hypertension; Osteoarthritis of the spine, right knee, fingers, toes; Osteoporosis, CNS problems, GERD, angina, 1st stage kidney disease. Many meds: Better living through chemistry