Hi Luppybelle, Welcome. I was on Benlysta for several years before having to stop due to an allergic reaction with Benlysta and the flu shot. I can attest that Benlysta calmed my SLE when other medications would not and allowed me to resume a somewhat normal life part of each month while I was receiving treatment.
Benlysta is a very, very expensive medication that takes a lot to get approved through your insurance, there is help through the company that makes the medication to offset some of the cost for those that meet the financial requirements. Your Doctors office will have all that. And it is also very time consuming, because I had so many allergic throughout the years my doctor infused my medication very, very slowly so I would be there anywhere from 4 to 6 hours.
One big misconception is Benlysta is a chemotherapy, it is not, it is a immunosuppressant or B-cell inhibitor. I have heard some individuals say their hair thinned considerably, I personally did not have this problem, I guess hair loss could be an issue, but I do believe it is rare.
The Benylsta.com website has a list of known side effects as well as will explain how the medication works, I found it very helpful when my doctor first mentioned it to me. www.benlysta.com/faqs/
"One of the important proteins for the growth of these B cells is called B-lymphocyte stimulator, or BLyS. BENLYSTA binds to BLyS and prevents it from stimulating B cells. Adding BENLYSTA to your other lupus treatments may help reduce the abnormal immune system activity that contributes to disease activity in lupus."
I wish you the best and hope if you try it, it brings you the much needed relief you are needing.[Edited to make link active.]
Post Edited By Moderator (Lynnwood) : 2/23/2017 8:01:43 PM (GMT-7)