Hi dmcdo1221. My Hubby has frontal lobe epilepsy, but only has seizures at night. I awake fairly often to help him. He's been on epilepsy meds since he was 15 and he's 56 now. I hope your epilepsy is mild and that your son hasn't seen you seize.
As for resting it's absolutely essential and we usually have no choice when it hits. One of our members told a story about her son. For Mother's Day his teacher asked all the kids to draw a picture of their mom doing her favorite thing. Her son drew a picture of his mom in bed because her favorite thing to do was rest. Lupus bites.
I love that you try to be happy with what you have. Most Lupies go through the stages grief when diagnosed because they feel that they have lost the life they had. I'm hope your rheumatologist gives you good news. Mine did on my first visit. He started me on medication and gave me lots of reassurance.
Oh, one last thing. When I worked my boss insisted that I try Noni juice "because it's good for the immune system." Turns out it boosts the immune system and our immune is already in high gear attacking our bodies. Noni juice made me so sick I flared terribly. Be sure to tell your rheumatologist all the meds you're taking including the Noni juice and let him decide if it is safe for you to keep taking it. Also write down all the symptoms you've been having and when you have them if you remember. Let us know how your visit goes and how you are feeling, ok? Love, Butterflake
SLE '05, Sjogren's, Fibro, Raynaud's, major depressive disorder, anxiety; CVID (Common Variable Immunodeficiency); IVIG infusion monthly; Hypertension; Osteoarthritis of the spine, right knee, fingers, toes; Osteoporosis, CNS problems, GERD, angina, 1st stage kidney disease. Many meds: Better living through chemistry