"Mild" Lupus...

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Regular Member

Date Joined Nov 2016
Total Posts : 22
   Posted 5/21/2017 8:49 PM (GMT -6)   
My rheumatologist told me either I'm at the very beginning of Lupus or I have "mild" Lupus.

I have no organ involvement.

I've been on Plaquenil since January.

Do you guys know if mild Lupus tends to stay mild or is it inevitable to get a more severe case?

PS- I laugh at the word mild. Some days I don't feel like it's mild! If I feel this bad I can't even imagine someone with a more severe case. My heart honestly hurts for them.

Veteran Member

Date Joined May 2005
Total Posts : 7723
   Posted 5/21/2017 9:37 PM (GMT -6)   
The only certainty about Lupus is that it is uncertain. I don't think of it as being inevitable that it gets worse, but to promise it will stay mild would be foolish.

I suggest doing your homework and taking care of yourself, follow the Dr's recommendations, and take one day at a time. Worrying only causes stress, and it's well known that stress can aggravate Lupus.
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2000
"Life is far too important to be taken seriously." - Oscar Wilde

New Member

Date Joined Jul 2017
Total Posts : 12
   Posted 7/19/2017 9:28 PM (GMT -6)   
My rheumatologist told me the exact same thing at my appointment today!

She added mild case of Lupus tends to stay mild so you shouldn't worry so much. I feel exactly same as you. I was sitting there thinking I don't feel like it's mild at all!

I haven't been diagnosed yet - in this loop of lupus and lyme.

Sorry I don't have an answer to your question but I believe in positive thinking. I used to always worry of the worst that can happen but it did more harm than good to my health.

Regular Member

Date Joined Jul 2011
Total Posts : 60
   Posted 7/20/2017 7:59 AM (GMT -6)   
All i can say to you both i hope it stops mild smile

Watado i hope your results come in negative regarding Lyme disease, as i have a friend in Arizona who as that very bad and i have to feel for her.

I found this info below explaining best possible for you both.



Not long ago, systemic lupus erythematosus (SLE) was thought to be fatal in nearly all cases. Few SLE patients lived much longer than five years after being diagnosed. In recent decades, thankfully, the outlook for those with SLE has brightened. According to the latest figures, more than 80% of those diagnosed with SLE will survive more than ten years and many will enjoy a normal life span.

We have made dramatic progress against SLE because potent new antibiotics are available to combat and prevent the serious and unusual infections that may complicate SLE. In addition, more effective corticocosteroids and immunosuppressive drugs now enable treatments for the various kinds of organ damage that SLE can cause. A good example is end stage renal disease, a potentially fatal kidney condition, which can be managed with improved dialysis and kidney transplant techniques. Finally, better diagnostic tests are helping doctors detect SLE earlier and identify milder forms of SLE that in the past would have been missed.

Many mild SLE sufferers are young women whose symptoms are limited to arthritis-like joint pain, episodes of fatigue, sunlight-induced skin rashes, mild anemia and problems with blood platelet regulation. Mild SLE sufferers never develop the life-threatening severe form of the disease. That is the good news. The bad news is that for those with mild SLE, the side effects of conventional treatments, such as long term corticosteroid and immunosuppressive drugs, outweigh their benefits.

Diagnosed with MCTD (Mixed connective tissue disease)

Lupus SLE/SCLE/Secondary Sjogren’s syndrome/Raynaud's phenomenon/Scleroderma
Antiphospholipid Syndrome/Peripheral neuropathy/Muscle Atrophy/COPD/Hypothyroidism
Chronic IBS/Epilepsy/Osteoarthritis (Bipolar-Manic depression-OCD)
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