Lupus and other Autoimmune Diseases

How to stop Autoimmune System from attacking
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Humira causing Lupus - 0.0%
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Could joint pain just be from Colitis - 0.0%
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Could joint pain just be from Autoimmune Hepatitis - 100.0%

 
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autoimmunegonewild
New Member


Date Joined Jun 2017
Total Posts : 2
   Posted 6/18/2017 9:59 PM (GMT -6)   
I was diagnosed with Ulcerative Colitis last July. In October I was diagnosed with Autoimmune Hepatitis and then in November diagnosed with Primary Schlerosing Cholangitis (PSC) or Bile Duct Disease.

Started having joint pain last September but now it has gotten worse so Rheumy and Hepatologist suspect Lupus. Early testing results are positive.

I have been on Humira since April but have been told that my Lupus is not drug induced.

Looks like my Autoimmune system is out of control. Have had a slow release Prednisone shot that supposedly lasts for 3 months and am on Plaquenil.

Anybody else experienced anything like this who has had any success slowing their Autoimmune system from attacking itself?

Not sure what to do next! Thanks. smile

Lynnwood
Veteran Member


Date Joined May 2005
Total Posts : 7723
   Posted 6/19/2017 12:53 PM (GMT -6)   
Welcome to HW!

Check out our Lupus 101 thread, it gives lots of information as to how our autoimmune diseases are treated. The rheumy is the right person for the job!
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2000
DIAGNOSING LUPUS & HW's LUPUS 101
"Life is far too important to be taken seriously." - Oscar Wilde

Lisabeans
Regular Member


Date Joined Jun 2015
Total Posts : 146
   Posted 6/29/2017 9:07 AM (GMT -6)   
Sorry for all your suffering. You are in the right place for answers and support. I have ulcerative colitis since 2005 which is thankfully in remission. I started having widespread joint and muscle pain almost 3 years ago along with swelling and other symptoms. My only positive blood test was the ana. Everything else is normal. My rheumatologist says I am prone to ai issues. I also have vertigo since the winter. I wish I had an answer for you but some of the people on this site have been lucky enough to hit remission with their lupus. Good luck. Keep us posted.
Lisa
Ulcerative Colitis (remission)
GERD Reflux taking Zantac
Recently low positive ana. Taking Leflunomide (arava).
Also taking Amitriptyline to prevent migraines.

starchick77
New Member


Date Joined Jul 2017
Total Posts : 1
   Posted 7/18/2017 11:00 PM (GMT -6)   
Hey! I have AIH and joint pains were one of the first symptoms.

Diamond20_UK
Regular Member


Date Joined Jul 2011
Total Posts : 60
   Posted 7/20/2017 8:52 AM (GMT -6)   
Sprouts are very bad for triggering flares but what does help the immune system is yogurts and Probiotics Drinks such as Yakults, which i have daily to help my flares but if you ever take antibiotic's for anything make sure you have probiotic's with them as it helps your immune system besides the antibiotics as they try to help what ever your taking them for.

/www.hopkinslupus.org/lupus-info/lifestyle-additional-information/avoid/

Terry
Diagnosed with MCTD (Mixed connective tissue disease)

Lupus SLE/SCLE/Secondary Sjogren’s syndrome/Raynaud's phenomenon/Scleroderma
Antiphospholipid Syndrome/Peripheral neuropathy/Muscle Atrophy/COPD/Hypothyroidism
Chronic IBS/Epilepsy/Osteoarthritis (Bipolar-Manic depression-OCD)
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